Researchers warn covid-19 could cause debilitating long-term illness in some patients | Washington Post | 30 May 2020
Two key figures in worldwide ME advocacy – Brian Vastag and Beth Mazur – review the research.
May 2020
You can take the girl out of Yorkshire – you can’t take Yorkshire out of the girl! | 28 May 2020
Hannah Collins – there’s good cheer in that right good cuppa!
The ME Association End of Week Research Round-up and Research Index Update | 29 May 2020
The ME Association End of Week Research Round-up and Research Index Update | 29 May 2020 Read More »
There were two new research publications this week, and we’ve updated the MEA Research Index.
ME Awareness: Living with ME, Self-isolation and Severe Asthma, by Leanne Swift | 29 May 2020
“Worse is the fear of getting this nasty coronavirus. I know if I get it I could be in serious trouble, especially with the Asthma, but even with M.E…”
ME Awareness: “Ted Hughes once said: ‘Poetry needs a reason’. It would appear ME is my reason to write,” by Ffion | 29 May 2020
“Everyone is talking to everyone else and, with so many good people on our side, things will change for us.”
A Marathon at snail’s pace and a Face Mask challenge – more tales from our fundraising frontline | 28 May 2020
Two more fundraising champions who are desperate for the ME Association to survive.
ME Awareness: ‘Dialogues for a neglected illness’ a Wellcome Project by Natalie Boulton and Josh Biggs | 27 May 2020
The project comprises a series of highly recommended films. The latest video is about Severe and Very Severe ME/CFS.
ME Awareness: Columbia University: Will there be a Post-COVID-19 form of ME/CFS? | 26 May 2020
“There is abundant evidence that ME/CFS can follow apparently infectious illnesses of uncertain cause, or a clearly diagnosed infectious illness…”
ME Awareness: “What you need,” he said, “is a job harvesting cabbages,” by Ruth Rookledge | 25 May 2020
“For about the next year or so I thought I must just be imagining an illness, that it was my fault, it wasn’t real…”
ME Awareness: “These lost years have been a grieving process; a loss of a past life that seems so far away,” Naomi Gilchrist | 24 May 2020
“I hope that one day I will be able to use my lost years to help others by raising awareness of the plight of those living with M.E.”
ME Awareness: “I was living in a darkened room with my eyes shut for many long years,” Cheryl Russell | 23 May 2020
“It should have been the beginnings of my life instead it was the other way around. I was to lose all my 20’s and 30’s to this illness.”
ME Awareness: “I would have been a terrific husband and father if not for ME,” by Russell Fleming | 22 May 2020
“Without doubt my biggest regret has been that I have not been able to have my own family.”
The ME Association End of Week Research Round-Up | 22 May 2020
The ME Association End of Week Research Round-Up | 22 May 2020 Read More »
The research bulletin highlights 2 of 4 new studies about ME/CFS published in the last week.
ME Awareness: “I have had symptoms of ME since I was a teenager – over 50 years ago,” by Ann Jones | 22 May 2020
“My husband has taken on housework, shopping, cooking and the garden so is effectively my carer.”
ME Awareness: Two More Fundraisers Join The ME Association’s Headshave Hall of Fame! | 22 May 2020
Helen Leonard-Williams and Helen McLean entered the Headshave Hall of Fame after they let the scissors loose during ME Awareness Week.
ME Awareness: “I was training for the London Marathon, when I felt I’d got a virus that I couldn’t quite shift,” by Tracey Barraclough | 21 May 2020.
“It’s been a long two years coming to terms with M.E. and it’s still a work in progress.”
ME Awareness: “I went to my GP to be told that M.E. did not exist as a recognised illness!” by Wend Jordan | 20 May 2020
“There is still such a stigma attached to M.E. that I rarely talk about it even if people ask – I’m worried by their reaction.”
Press Release: Couple swim length of English Channel at home for the ME Association | 20 May 2020
A north Somerset couple have been swimming the length of the English Channel at home to help save a charity that supports their daughter.
British Medical Journal Opinion: Covid-19 and fatigue – a game of snakes and ladders | 20 May 2020
“I am reading materials about pacing and CFS/ME and listening to the CFS/ME community.” Prof. Paul Garner.
ME Association Guidance: Reducing the risk of Covid-19 and PVFS/ME/CFS | 19 May 2020
ME Association Guidance: Reducing the risk of Covid-19 and PVFS/ME/CFS | 19 May 2020 Read More »
We are launching a new leaflet and an update to add to the range that we have published since the very beginning of the pandemic and national lockdown.