May 2018

Keri Johnstone spent her Bank Holiday Monday doing a Charity walk in aid of the ME Association ‘Go Blue for M.E.’ campaign.

“I believe that the working world is still very unaware of the symptoms caused by M.E.”

Raising funds for M.E. research “Because I want my friend to be able to have a normal life again.”

“The worst comment I get is “I get tired too, its our age”. If you don’t have M.E., you honestly don’t know the meaning of the word.”

ME Association supporter, Sally Callow, has been writing a six-part series for her local newspaper, helping to raise awareness of M.E.

“I was an adrenaline junkie who had done three skydives – now I can’t work, spend weeks in bed and am unable to do anything,”

It is hoped that the more signatures this new EDM attracts, the greater the chance of an actual debate in parliament.

Due to the stigma of the condition Merryn was “embarrassed” about having ME, and was reluctant to tell people that was what was wrong with her.

I had just finished my GCSEs when I got ill. I noticed I was getting worn out uncharacteristically quickly.

Dr Shepherd says the problem with GET is that it’s too rigid and pushes patients too far.

People with M.E. are demonstrating they possess the confidence to be seen and help raise awareness of M.E.

“In the workplace, most managers genuinely want to help. But, due to lack of information and guidance about M.E. they can make mistakes.”

“I have done this in aid of the ME Association who do a vital job raising awareness of M.E. and supporting those with the condition.”

“Graded exercise therapy mistakenly assumes that ME/CFS fatigue and disability result from inactivity and deconditioning.”

“I was still mobile at the beginning but my health continued to deteriorate due to a lack of treatment and support,” Jo Moss.

Our focus on employment and education issues continues today with a new survey on education.

This BBC Newsbeat documentary will be available on iPlayer from 6.00am on Tuesday, 8th May.

Pippa says that people simply don’t understand about living with a disability like M.E.

Joan McParland found herself bed bound due to the debilitating, energy sapping condition ME, but she is now helping others with the illness to campaign for an improvement in services.