We asked those who suffer with Severe M.E if they would like to submit their stories to be published on the ME Association website blog.
In this introduction you will find a discussion about the need for suitable healthcare. Also background about severe and very severe M.E. and the support that is available.
Holly aged 9, has written about her mum, Chantalle, and explains what life is like being the daughter of a parent with M.E.
The Summer Magazine is a bumper 68-page issue with news, research, DecodeME, interviews, stories, recipes and much, much more. Become a member today!
The project comprises a series of highly recommended films. The latest video is about Severe and Very Severe ME/CFS.
“There is still such a stigma attached to M.E. that I rarely talk about it even if people ask – I’m worried by their reaction.”
“I guess my Christian faith sustains me even though a lot of the time I feel like I’m just holding on with my fingertips.”
“To be a disabled person does not mean that you must solely be a wheelchair user or someone with a physical deformity.”
Emma spent a decade in isolation at home after becoming severely ill with ME in 2004. She has been interviewed by the BBC together with Dr Shepherd.
“I’ve got steadily worse, less and less able to work, missing out on all social outings, not able to take holidays due mainly to lack of finances…”
Sharing your story is one of the best ways we have of improving understanding and awareness of M.E.
This year marks 10 years of M.E for me. With 6 1/2 of those being severe, I wanted to write a little something that might help others cope.
We’ve been talking about mental health on social media. Russell explains how he’s faced up to these challenges over the years.
“No human being can endure what we endure as M.E. sufferers and come away unscathed.”