ME/CFS Team North, Mid, East Devon and Exeter

Address & Contact
Osprey House Level 2 Suite 3
Osprey Road
Exeter
EX2 7WN
01392 908631
Website

Referred by GP 09.2024 at my request for the NICE care plan with annual reviews as recently agreed, after years of battling. Letter response stated this service is 2.5 OTs covering vast area with no resources for NICE care plans. No consultant. Only offered group Online Fatigue Management Course, wait list 12 months minimum. I am 23 years post-diagnosis of ME, soldiering on alone, as ever.

This is a really valuable service. The team were professional, friendly and respectful, but unfortunately slow to reply to communications, which suggests that they are dealing with a huge workload. Their efforts are greatly appreciated, though. The social prescribing element is helpful, but it’s still disappointing to be ‘discharged’ when patients are obviously still unwell and need support.

The team here were very knowledgeable and friendly, and the online group sessions they organised were very useful. However, most of us were disappointed that the service could not provide long-term support for us and that we were all inevitably discharged.

Refreshingly knowledgeable clinic offer quiet space if needed to rest. Helpful information. Explained well and slowly. Dim lights. It is a shame there service is not offering long term support.

• Adult service only
• Low to severe cases seen
• We cover North, Mid, East Devon and Exeter
• From GPs and Long-covid pathway only
• we are therapy led so are unable to provide diagnostic assessments or advice on medication
• We offer 1:1 appointments for initial assessments and a follow up appointment. These can be – face to face (just for initial assessments) or via Attend Anywhere or telephone.
• Thereafter we offer a 7 week online group programme looking at activity management, sleep strategies, effective rest and relaxation, diet, exercise, impact of thoughts, memory and concentration, self-care planning and managing set-backs. Although we do also offer further 1:1 sessions for those unable to attend the group programme.
• We have an establishments 2.5 Whole Time Equivalent specialist Occupational Therapists