**Trigger Warning – Upsetting Content**
The UK Tonight programme (09.12.24) with Sarah-Jane Mee covers severe ME and speaks with Karen Gordon's mother about her daughter's current situation in hospital.
It also reports on calls for specialist care in NHS hospitals for people with ME/CFS following the tragic death of Maeve Boothby O'Neill and the Prevention of Future Deaths Report issued by the coroner.
The segment starts at around 17.30
MEA Comment
This was a long and detailed report on the failures of the NHS to care for people with very severe ME/CFS who require hospice admission and are at risk of life threatening malnutrition.
The focus was on Karen Gordon, who is currently in hospital and not able to obtain the specialist care she requires at another hospital in London.
Interviews with Heather Gordon, Prof Chris Ponting in Edinburgh (DecodeME study), Anna Gregororski (BACME) and Sarah Boothby.
Dr Charles Shepherd,
Trustee and Hon. Medical Adviser to the ME Association,
Member of the 2018-2021 NICE guideline on ME/CFS committee,
Member of the 2002 Chief Medical Officer's Working Group on ME/CFS
