Myalgic encephalomyelitis/chronic fatigue syndrome has a wide range of debilitating symptoms which include chronic pain and overwhelming exhaustion that significantly impacts quality of life, and among the co-morbid conditions people may experience are migraine type headaches.
Throughout September and to coincide with Migraine Awareness Week (23rd -19th), we asked you to complete a survey regarding your experience of migraine type headaches and we were pleased with the response with 869 people completing the survey to date.
Here is a snapshot of the results:
Do you have ME/CFS, Long Covid or both?
- ME/CFS 86%
- Long Covid 4%
- Both 12%
Do you also have Fibromyalgia and/or Temporomandibular joint disorder?
- No 53%
- Yes, Fibromyalgia 29%
- Yes, TMJ 9%
- Both conditions 8%
How often do you have headaches or migraines?
- 3 or more times a week 46%
- 1-2 a week 22%
- 1 every 2 months 2%
- 1-2 per month 10%
- 3 or more a month 16%
How severe are your headaches or migraines?
- Mild – temporarily affects ability to do activities of daily living (ADL's) 30%
- Moderate – can affect ADL’s for several days 41%
- Severe – can regularly affect ADL’s 28%
- Very severe – greatly affects ADL’s for a sustained amount of time 14%
