ME Awareness: The Real ME – The Things People Do – Kristian’s Story | 07 May 2019 Read More »
“My lovely Hanna-Lisa’s energy levels have gradually reduced over time due to her condition and she is now unable to work,” Kristian Legg.
“Living with ME is like waking up with the worst flu and hangover combined you’ve ever had in your life, every single day.” Nicola Ingram.
ME Awareness: The Real ME – How This Disease Affects Me – Rog’s Story | 06 May 2019 Read More »
“Sometimes the inevitable pain and fatigue is just the price I have to pay to get things done.” Rog Warner.
ME Awareness: Helen McLean is Going Blue for M.E. | 06 May 2019 Read More »
Helen is doing the best she can to still live her best life. It can be frustrating, upsetting and overwhelming at times, but she’s trying.
“A neurologist even said “ME is not a real disease.” The medics made her doubt herself and feel ashamed.” Clare Norton.
ME Awareness: Press Release: Real People. Real Disease. Real M.E. | 06 May 2019 Read More »
“We want to tell the world about the Real People that suffer because of this Real Disease – day after day, week after week, year after year, and in some of the cruellest cases, decade after painful decade.”
“It is time for egos to be put aside, for the science to be listened to, for patients to be listened to and the Hippocratic Oath to be remembered – first, do no harm.” Clare Norton.
“I now live my life mainly housebound. The same four walls day in, day out, drain any positivity you can try and muster.” Hayley Date.
“One of the most heartbreaking cases I’ve dealt with was an eight-year-old girl who was forced to have GET. Her parents were told that if they didn’t comply, she’d be taken away,” Dr Nigel Speight.
“At my worst it didn’t feel like much of a life – just an existence waiting for a cure.” Hannah Grundy.
ME Awareness: ‘Winter Hill’ Film Premiere in ME Awareness Week! | 03 May 2019 Read More »
“Winter Hill is a personal and powerful documentary short film by filmmaker Lee Gray.” FilmsShort.
“All we, the ME community, want is fair treatment and a chance for a future.” Jo Moss
ME Awareness: ‘Just for ME’ A Fast-moving Adventure Story by John Martin | 02 May 2019 Read More »
John Martin has written 3 children’s books and Just for ME is his first novel. His daughter has suffered from M.E. for 26 years and was his inspiration.
ME Association April Summary of ME/CFS Published Research | 01 May 2019 Read More »
We’ve updated our central Research Index and feature 15 ME/CFS research studies from April 2019.
MEA Website Survey: What does ME Awareness Week mean to you? | 01 May 2019 Read More »
What does this special week mean to you? What issues do you believe should be the focus of ME Awareness Week?
Fundraising: Art Auction: Invisible – A New Look At M.E. by Anne Nicholls | 01 May 2019 Read More »
“My M.E. pictures reflect the experience of so many of us. I want us to be visible. Don’t you?”
Stanford: Biomarker for Chronic Fatigue Syndrome Identified? | 30 April 2019 Read More »
“We clearly see a difference in the way healthy and chronic fatigue syndrome immune cells process stress.” Dr Ron Davis.
ME Research Summary: Something In The Blood by Simon McGrath | 27 April 2019 Read More »
Four independent groups have now found that a factor in the blood can affect cell metabolism/mitochondria in ME/CFS.
“There is little scientific credibility in the claim that the psycho-behavioural therapies should be primary treatments for this illness.”
Why ME Awareness Week Is An Ideal Time To Fundraise | 26 April 2019 Read More »
“If fundraising has been sitting in the back of your mind lately, now’s the time to give it a go.”
