There’s No Point in me having a Netflix subscription or an Audible account by Anna Wood | 07 August 2019
Cognitive symptoms are common for everyone who has M.E., but it is the cognitive fatigue which disables me the most.
2019
The Care Act and M.E. – Positive Decision by the Ombudsman and Case Study| 06 August 2019
This ombudsman decision shines a light on the difficulty that some people with M.E. face in obtaining social care.
My daughter and the pervasive dangers of PACE in paediatric M.E. by Adam Johnson | 06 August 2019
Zoe was put under surveillance – monitors, lights on constantly, nurses watching her eat and humiliatingly insisting on escorting her to the loo…
Tips for coping with Severe M.E. by Laura Brockway | 06 August 2019
Tips for coping with Severe M.E. by Laura Brockway | 06 August 2019 Read More »
This year marks 10 years of M.E for me. With 6 1/2 of those being severe, I wanted to write a little something that might help others cope.
Fundraising Feature: NCS Stamford are doing an incredible amount for M.E. | 05 August 2019
NCS Stamford have set themselves an ambitious 3-day target and we wish them all the best of luck.
ME Association July Summary of ME/CFS Published Research | 05 August 2019
ME Association July Summary of ME/CFS Published Research | 05 August 2019 Read More »
We’ve updated the central Research Index and feature 13 ME/CFS research studies from July 2019.
MEA Website Survey: Illness Severity and Definitions | 05 August 2019
MEA Website Survey: Illness Severity and Definitions | 05 August 2019 Read More »
This month we’re asking about your level of illness severity and for a discussion around definitions.
Introducing Severe M.E. Week from the ME Association | 05 August 2019
Introducing Severe M.E. Week from the ME Association | 05 August 2019 Read More »
It is Severe ME Day on Thursday, but we think people severely affected deserve to have a full week dedicated to raising awareness.
Fundraising Feature: Sarah is Scaling the Highest Mountain for M.E. | 01 August 2019
Fundraising Feature: Sarah is Scaling the Highest Mountain for M.E. | 01 August 2019 Read More »
Sarah Bascombe will be travelling to the Lake District on Saturday to scale the highest mountain in England.
New Technology Should Help Make Education More Accessible to People with Chronic Illnesses – by Anna Wood | 01 August 2019
Anna explores how technology can help to include more chronically ill students in education.
Fundraising Feature: John walked 100 kilometres for his daughter – and for M.E. | 31 July 2019
John has never tackled anything quite like it before, but was inspired to do something to show support for his daughter Elaine.
The Guardian: ME and the perils of internet activism | 29 July 2019
The Guardian: ME and the perils of internet activism | 29 July 2019 Read More »
This latest article continues to shine an uncritical spotlight on an issue that we really don’t think stands up to scrutiny…
MEA Summary Review: The Role of Mitochondria in ME/CFS | 13 July 2019
MEA Summary Review: The Role of Mitochondria in ME/CFS | 13 July 2019 Read More »
This latest review looks at energy production, and the ongoing search for clues as to what might be causing problems in ME/CFS.
MEA Personal: Facing up to Mental Health Challenges | 11 July 2019
MEA Personal: Facing up to Mental Health Challenges | 11 July 2019 Read More »
We’ve been talking about mental health on social media. Russell explains how he’s faced up to these challenges over the years.
Raising Awareness of Severe ME – A Call for Case Studies | 10 July 2019
Raising Awareness of Severe ME – A Call for Case Studies | 10 July 2019 Read More »
Severe M.E. Day is approaching in August, and we are asking you to share your stories and experiences.
Turning a Passion for Wildlife into Prints for M.E. | 08 July 2019
Turning a Passion for Wildlife into Prints for M.E. | 08 July 2019 Read More »
Jen Taylor is very kindly raising money for the ME Associaion by selling her fabulous limited edition animal prints.
Advances in Understanding the Pathophysiology of ME/CFS | 08 July 2019
Advances in Understanding the Pathophysiology of ME/CFS | 08 July 2019 Read More »
When does an illness become a disease? Dr Komaroff explores what we know about the biological abnormalities in ME/CFS.
The Emotional Impact of a Long-term Physical Illness by Anna Redshaw | 08 July 2019
The Emotional Impact of a Long-term Physical Illness by Anna Redshaw | 08 July 2019 Read More »
“No human being can endure what we endure as M.E. sufferers and come away unscathed.”
The Times – Baroness Blackwood: Why I fainted in the House of Lords | 08 July 2019
The Times – Baroness Blackwood: Why I fainted in the House of Lords | 08 July 2019 Read More »
Baroness Blackwood had been misdiagnosed with ME/CFS before it was determined she had Ehlers-Danlos Syndromes (EDS).
ME Association June Summary of ME/CFS Published Research | 05 July 2019
ME Association June Summary of ME/CFS Published Research | 05 July 2019 Read More »
We’ve updated our central Research Index and feature 17 ME/CFS research studies from June 2019.