Poems (4 of 4 website blogs)
In the world but worlds away
Present in the confines of my shell
I look like me and talk like me
In my distorted version of hell
Unseen, unheard, a fading ghost
A breathing corpse
A voice on the telephone
Would have you believe I’m here
Fooled by sounds that mimic mine
No footprints left in the sands of time
Barefoot, shoes belonging to another life
Autumn wellies adorned but twice
Winter slips to spring, slips to summertime
Oh, but to slip on a pair of shoes
A foreign relic left behind
No rhyme or reason to my crime
The seasons pass and nothing happens
Energy so low it’s rationed
I crave to dance, to walk, to play
To never waste another day
I look like me in different clothing
I wear all black these days in mourning
No longer recognise myself
I’d trade my soul for an ounce of health
A wake of cosmic dancing and dreams unfold
Remenicing a world where stories used to be told
My life has been lost in a wooden wardrobe
Where attire inspires forgotten tales to embrace
Each thread a symbol of hope and grace
– By Nadine
Myalgic Encephalomyelitis, the name they give,
An illness so misunderstood, its hard to live
It turns out invisible,
Means dismissible
The cause unknown,
We are left alone
Symptoms unseen,
My life robbed of all that could’ve been
M.E. the illness i cannot prove,
My limbs are weak, I cannot move
The waves drag me under,
The symptoms hit like thunder
Then the concrete feeling sets in,
My world turns dim
My body broken, my sprit drained
A life half lived, forever restrained
Pain and exhaustion beyond compare,
A struggle to breathe, a gasping for air
I lay in bed for days and weeks,
Not able to find the energy my body seeks,
Weighed down, my head throbs and my eyes burn,
My body aches, my muscles quake, but met with unconcern
In silence and stillness I exist,
Living in a body that always resists
Now trapped inside the four walls of this room,
I have little life, my body consumed.
Days blur into weeks, weeks into years,
A life thats been stolen, a future full of fears.
This is the life of M.E.
A chronic illness thats hard to see
Waiting for someone to lift this heavy veil,
To set me free from my body’s jail
For now i lay here day after day,
Hoping for change, in some way
But funding is missing,
It seems no one is listening.
We fight to get our voices heard,
Not listened to, but not deterred.
You never see, You ignore M.E.
– By Katie
I have the Will but not the power
If I could only get in the shower
I have the Will to sit up and stand
If I could only, wouldn’t it be grand
I have the Will to eat a good meal
If I could only, but I need to heal
I have the Will to play a game
But just watching isn’t quite the same
I have the Will to go swimming
If I could only, wouldn’t it be thrilling
I have the Will to sing and dance
That would be my life at a glance
I have the Will to go out skipping
I have the Will, but the clock is ticking.
– By Alison Love
