Happy To Move For You… helping invisibly ill people access seats on public transport by Ellie Kime | 21 October 2019
Ellie’s badges help people easily get a seat on public transport without needing to negotiate or feel anxious.
2019
Invisible Illness Week The Sunflower Lanyard Scheme by Kate Stanforth | 18 October 2019
Invisible Illness Week The Sunflower Lanyard Scheme by Kate Stanforth | 18 October 2019 Read More »
Kate reviews a popular scheme that provides extra assistance to people with disabilities.
Make ME Visible Campaign – Mummying and ME | 16 October 2019
Make ME Visible Campaign – Mummying and ME | 16 October 2019 Read More »
The term “invisible illness” suggests there is nothing to show for it. No clear symptom that Joe Bloggs on the street would see as such.
Invisible Illness Week 2019 – Masked, Trapped and Crumbling by Kate Stanforth | 15 October 2019
Kate teamed up with a professional make-up artist and photographer to create concepts visualising her medical conditions.
Make ME Visible Campaign – Invisible Illness Week 2019 | 14 October 2019
Make ME Visible Campaign – Invisible Illness Week 2019 | 14 October 2019 Read More »
Is M.E. really an invisible illness? Which elements are visible and which parts remain hidden?
Telegraph: Most people complaining of Lyme disease are actually suffering from chronic fatigue, say experts | 12 October 2019
Following a SMC briefing, many news-media outlets report on the claim that chronic lyme disease is likely to be CFS.
ME Association September Summary of ME/CFS Published Research | 05 October 2019
ME Association September Summary of ME/CFS Published Research | 05 October 2019 Read More »
We’ve updated the central Research Index and feature 12 ME/CFS research studies from September 2019.
MEA Website Survey: The Benefits of Having a Pet | 04 October 2019
MEA Website Survey: The Benefits of Having a Pet | 04 October 2019 Read More »
This month we’re all about Pets and how much they can mean to someone who is not in the best of health.
Amended Cochrane Review: ‘Exercise therapy for chronic fatigue syndrome’ | 03 October 2019
The influential Cochrane organisation has published an updated review and issued a statement following concerns expressed by the patient community.
The Undefeatable Campaign: “I Sometimes Feel Defeated By My Disability – And That’s Okay,” by Pippa Stacey | 02 October 2019
Pippa explains what this national campaign has meant to her and we update on a recent meeting with Sport England.
M.E., Dysautonomia and Me by Naomi Gilchrist | 01 October 2019
M.E., Dysautonomia and Me by Naomi Gilchrist | 01 October 2019 Read More »
Naomi talks about her recent diagnosis and how it compounds her daily struggles with M.E.
The Disability Passport: A useful item to have if you are still able to work, or considering a return to work | 20 September 2019
Dr Shepherd reviews the evidence for using disabled passports at work.
How to Survive University with M.E. – The ME-friendly packing list! By Emily Bailey | 13 September 2019
Emily tell us about some of the things that have helped make her university experience more tolerable.
Forward ME: Medical Colleges have important role to play in encouraging clinicians to listen to patients | 11 September 2019
These are the minutes from the recent Forward ME meeting in July 2019.
How to Survive University with M.E. – DSA and Social Care by Emily Bailey | 10 September 2019
Emily takes us through her survival techniques and offers help and advice on how to survive at university with M.E.
Tribute paid to Professor Peter Behan – M.E. expert and ME Association patron | 09 September 2019
We all owe an enormous debt of gratitude to Peter. He will be sadly missed and I will be attending his funeral on Friday 13th September in Edinburgh.
“I am a teacher, but M.E. has taught me who I really am,” by Lorna McFindlow | 06 September 2019
M.E. has taken Lorna out of the classroom but there’s more to an identity than a career.
How to Survive University with M.E. – The First Term by Emily Bailey | 05 September 2019
How to Survive University with M.E. – The First Term by Emily Bailey | 05 September 2019 Read More »
Emily takes us through her survival techniques and offers help and advice on how to survive at university with M.E.
M.E. charity representatives meet with Scotland’s NHS to discuss future provision | 05 September 2019
Ewan Dale reports on a recent meeting to discuss the future of healthcare in Scotland.
UK Government: People with hidden disabilities can now apply for a Blue Badge | 05 September 2019
Changes to Blue Badge parking criteria have come into effect making it easier for people with non-visible disabilities to get one.