ME Awareness Week is observed every year in May surrounding International ME/CFS Awareness Day (also known as World ME Day) on 12th May.  

This year, we are focusing on information surrounding the symptom management of ME/CFS. Please keep any eye out on social media for our posts!

It's also not too late to organise your own fundraiser to support us during ME Awareness Week. Take a look at our fundraising resources, download graphics to share on social media, or take part in Anna Redshaw's Blue Sunday: Tea Party for ME!

ME (myalgic encephalomyelitis or encephalopathy), also known as CFS (chronic fatigue syndrome), is multisystemic disease involving the brain, muscle, immune and neuroendocrine (hormone producing) systems. 
 
It is estimated that between 130,000 and 260,000 people in the UK have Myalgic Encephalopathy – the name we prefer – Myalgic Encephalomyelitis, or Chronic Fatigue Syndrome (ME/CFS). 
 
ME/CFS symptoms include profound debilitating fatigue with worsening of this exhaustion after activity (post-exertional malaise), cognitive dysfunction (poor short-term memory & concentration), and unrefreshing sleep or sleep disturbance.  

Get Involved this ME Awareness Week

Community group fundraising with an outdoor bake sale

Fundraise with Us

Take part in one of our events or hold your own to raise money. We're here to support you every step of the way.

Campaigning officer out fundraising at a community centre event

Campaign

People with ME have had to fight for the research, care and support they desperately need. Our campaigns are a force for change.

Blue Sunday

Take part in Tea Party for ME this Blue Sunday, 18th May, to raise money for ME Charities

Donate to the ME Association this ME Awareness Week

ME Awareness Week Graphics and Resources

The ME Association produces a range of graphics each year for ME Awareness Week, designed to help you in raising awareness, fundraising and sharing your story.

We'll continue to update these throughout ME Awareness Week as we share more graphics on social media.

ME/CFS: The Hidden Crisis

ME/CFS is a hidden crisis affecting millions, leaving many bedbound and unseen. This debilitating illness robs people of their health, yet research and medical support remain critically inadequate. Awareness is key to change.

Join us in demanding urgent action for those suffering in silence.

Donate now: https://meassociation.org.uk/donate
Get Involved: https://meassociation.org.uk/get-involved

#MECFS #pwME #MEAssociation #HiddenCrisis #BeforeME MEAwarenessWeek2025 #MEAwarenessWeek #MEAwareness

ME/CFS Symptom Graphics:

ME/CFS is a complex, chronic medical condition affecting multiple body systems and it has a wide range of debilitating symptoms.

Please take 5-10mins to read all about #MECFS on the @MEAssociation website here: https://meassociation.org.uk/what-is-mecfs/

#pwME #MEAssociation #MEAwarenessWeek2025 #MEAwarenessWeek #MEAwareness

ME/CFS Symptom Wheel

ME/CFS is a complex multisystem disease with a wide range of disabling symptoms. One of the main symptoms people with ME/CFS experience is referred to as ‘fatigue', however, this word does not even begin to describe the severe debilitating exhaustion and depletion of energy that people with ME/CFS experience on a daily basis.

All these symptoms dramatically affect a person's quality of life and their ability to function to complete every tasks.

Please take 5-10mins to read all about #MECFS on the @MEAssociation website here: https://meassociation.org.uk/what-is-mecfs/

#pwME #MEAssociation #MEAwarenessWeek2025 #MEAwarenessWeek #MEAwareness

ME/CFS Symptom Posters

The ME Association has produced ME/CFS symptom posters in honor of ME Awareness Week, which you can download and print, or share on your social media.

Each poster features a different photo of someone with ME/CFS from our Real ME Campaign, aiming to show the reality of this devastating illness.

Perception v's Reality

Often for people with ME/CFS, there is a vast difference between the day to day experience of this illness, and the perception of it from the public.

This series of downloadable social media graphics addresses a range of false perceptions of ME/CFS, including assumptions about:

  • Age at which you can get sick
  • Similarities to Long Covid
  • Need for development of an effective treatment
  • False assumptions about the illness being psychosomatic
  • The need for rest to manage PEM

Stay up to date with ME Awareness Week by following us on Social Media!

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