Count ME In! You have spoken and we’re listening!

Thank you for taking the time to complete the survey. Your responses mean a great deal and will be used to help in the charity’s efforts to improve health and social care for all. The campaign will run during 2023 and we will share the survey outcomes will be produced in December.

The ME Association provides support, information, funds research and keep the community of people affected by the illness in touch with the latest developments that affect. Some of our services are shown below

Download our free booklet which explains more about the charity and the support and information we can offer


Join our mailing list to stay in touch and receive updates on the #CountMeIn survey

Support and Information is available 365 days a year. Call the helpline, send an email or social media message


If you have a story to share, about any of the issues raised by the survey, then we would really like to hear from you. Please email: Keep your initial email to 200 words and enclose a photograph if possible. Should we decide to use your story in charity publications, on the charity website or social media channels, or in the mainstream media, then we will seek your permission before we do.

The NICE Guidelines

The NICE Guideline on ME/CFS and the Guideline for Long Covid, provide a framework of evidence-based clinical recommendations to the NHS and social care services and carry information about symptom recognition, diagnosis, and how you can be supported to improve life quality.

We recommend that you try and read at least the Guideline on ME/CFS which is more comprehensive than the one on Long Covid. Highlight any recommendations that you feel are appropriate to your current situation and discuss them with your GP or specialist at your next appointment. Unfortunately, and this is something we are trying to change, not everyone has access to an ME/CFS specialist service or Long Covid clinic.

These are services that your GP should be able to refer you to and that NICE says should provide a multi-disciplinary approach to supporting people with these conditions. You should be able to receive support from your GP in the absence of a specialist service or clinic and your GP should also follow the NICE Guideline recommendations where possible or at the very least explain why they are not.


The ME Association has a large collection of literature covering management of the illness, benefits, using health services and more. Many of the items are free to download directly from our shop.

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