“I’ve got steadily worse, less and less able to work, missing out on all social outings, not able to take holidays due mainly to lack of finances…”
“Since the coronavirus started to spread I have cancelled all my support because I wanted to be completely isolated.”
“I’d like to say once I got the diagnosis, things got easier, but they didn’t. I ended up bedbound then ultimately paralysed in some of the darkest days I’ve experienced.”
“I grieve for the old me, while managing the situation I am currently in, and looking into the future and questioning, will I ever be well enough?”
ME Carers Connected can help put carers in touch with one another for mutual support and to share experiences.
Dr Shepherd provides another update and comprehensive guidance for people with ME/CFS.
We review the shopping situation in light of the restrictions and have written to supermarkets asking for more help.
They don’t see the days spent in tears from being in so much pain and the frustration of not being able to spend time with them.
It is Severe ME Day on Thursday, but we think people severely affected deserve to have a full week dedicated to raising awareness.
Jen Taylor is very kindly raising money for the ME Associaion by selling her fabulous limited edition animal prints.