During the covid-19 lockdown, have you felt confident in the NHS’s ability to provide appropriate care and support as a person with ME/CFS?
The uncertainty surrounding recovery from Covid-19 is something that we hope is being discussed within the NHS and Government, but pacing and self-management remain the only options for many people.
The ME Association said many people are asking whether or not their post-Covid fatigue could be developing into ME.
Paul Garner, Professor at the Liverpool School of Tropical Medicine, talks about those who have not recovered from Covid-19.
“I hope that one day I will be able to use my lost years to help others by raising awareness of the plight of those living with M.E.”
“It’s been a long two years coming to terms with M.E. and it’s still a work in progress.”
“There is still such a stigma attached to M.E. that I rarely talk about it even if people ask – I’m worried by their reaction.”
“I’m struggling to come to terms with the fact I was not diagnosed for so long, and am angry that I suffered needlessly for 24 years.”
“The GP’s I have seen treat everyone based on symptoms rather than the whole illness itself…”
“I’ve got steadily worse, less and less able to work, missing out on all social outings, not able to take holidays due mainly to lack of finances…”
The online course can be taken by anyone with a professional interest in ME/CFS and will hopefully increase awareness and understanding.
Dr Charles Shepherd contributes to a new article about Covid-19 and possible Post-Viral Fatigue Syndrome.
“I have spoken to 111 several more times as my chest was worse but have been told to stay in bed for 1-2 more weeks and even minimise talking if necessary.”
“I suspect that the losses faced by many people with M.E. are in some ways uniquely different to almost every other patient group.”
We provide a weekly update on Covid-19 in a new free leaflet and a letter about vulnerability to be used when required.
Dr Shepherd provides another update and comprehensive guidance for people with ME/CFS.
Dr Shepherd provides an update and comprehensive guidance for people with ME/CFS.
We summarise all the key clinical, research and political evidence supporting a neurological classification for M.E.
What is your relationship like with your GP? Dr Shepherd will use the feedback we receive when talking with NICE and will also help answer questions on MEA Facebook this week.
The number of people in Nottinghamshire suffering from fibromyalgia has soared in recent years, according to new NHS figures.