“It’s been a long two years coming to terms with M.E. and it’s still a work in progress.”
“There is still such a stigma attached to M.E. that I rarely talk about it even if people ask – I’m worried by their reaction.”
“I’m struggling to come to terms with the fact I was not diagnosed for so long, and am angry that I suffered needlessly for 24 years.”
“The GP’s I have seen treat everyone based on symptoms rather than the whole illness itself…”
“I’ve got steadily worse, less and less able to work, missing out on all social outings, not able to take holidays due mainly to lack of finances…”
The online course can be taken by anyone with a professional interest in ME/CFS and will hopefully increase awareness and understanding.
Dr Charles Shepherd contributes to a new article about Covid-19 and possible Post-Viral Fatigue Syndrome.
“I have spoken to 111 several more times as my chest was worse but have been told to stay in bed for 1-2 more weeks and even minimise talking if necessary.”
“I suspect that the losses faced by many people with M.E. are in some ways uniquely different to almost every other patient group.”
We provide a weekly update on Covid-19 in a new free leaflet and a letter about vulnerability to be used when required.
Dr Shepherd provides another update and comprehensive guidance for people with ME/CFS.
Dr Shepherd provides an update and comprehensive guidance for people with ME/CFS.
We summarise all the key clinical, research and political evidence supporting a neurological classification for M.E.
What is your relationship like with your GP? Dr Shepherd will use the feedback we receive when talking with NICE and will also help answer questions on MEA Facebook this week.
The number of people in Nottinghamshire suffering from fibromyalgia has soared in recent years, according to new NHS figures.
A MODEL has revealed how her life was left “unrecognisable” after being blighted by a cruel energy-sapping disease that took eight years to diagnose.
“I’m for the badge because it alerts everyone to the fact you have an issue whether it be M.E. or possibly another illness that is also invisible.”
What are the issues of most concern to you? Please complete the website survey and share your comments.
Ewan Dale explains how the MEA has responded to this latest consultation from NICE and we review the controversial clinical guideline.
The RCGP conference is underway and we’re there with Forward ME. Medical student Emilia Allwright has presented her research based on your responses to a recent survey.