Tag: Myalgic Encephalopathy

Do you have a passion for M.E. research? We are seeking a suitable candidate to join our team and help report scientific advances to the patient community.

Paul Garner continues his BMJ Blog, explaining his experiences with Long-Covid and calls for appropriate guidance and support.

This letter is now available for anyone to download and share to help raise awareness of Post-Covid management and the similarities with M.E.

Fancy some northern humour? Take a look at Rich Davenport’s comic genius. Proceeds from his latest book kindly donated to the ME Association.

The responses from Chris Whitty at the Department of Health and Social Care and Stephen Powis at NHS England to ME Association concerns, were very disappointing.

“The NHS is urging people to exercise at a time when many, just like people with post-viral ME, need to rest, recuperate and pace themselves,” Countess of Mar.

With temperatures soaring in parts of the country, we consider ways that you can keep cool and help prevent an increase in symptom severities.

Kara’s brilliant album, recorded from her sickbed, is performing exceptionally well in the charts. Download your copy today!

This week we feature three new research studies including a critical review of genetic research ahead of the DecodeME study.

M.E. changed his mum from “being called Tigger because she was always so full of life” to someone who now has to count every ounce of energy used in case it runs out and leaves her floored for days.

We asked those who suffer with Severe M.E if they would like to submit their stories to be published on the ME Association website blog.

“It is incessant, inescapable torture. You are trapped. Completely powerless. You’re in agony with countless unbearable symptoms…”

We have updated the central index of ME/CFS published research for July, and include 4 new studies published this week.

Holly aged 9, has written about her mum, Chantalle, and explains what life is like being the daughter of a parent with M.E.

Dr Charles Shepherd explains why we have been devoting so much time and effort to covering issues relating to Post-COVID Syndromes.

‘A Girl Behind Dark Glasses’ has beaten 13 other books on the short list to win an award voted by readers themselves…

In response to a letter from Drs. Shepherd and Weir, NICE produced a statement about graded exercise therapy for Post-Covid management.

New Statesman: For #LongCovid sufferers – around 5 per cent of those who catch the disease – debilitating symptoms drag on interminably.

The uncertainty surrounding recovery from Covid-19 is something that we hope is being discussed within the NHS and Government, but pacing and self-management remain the only options for many people.

We update our general leaflet on Covid-19 and ME/CFS and this is reproduced below along with all our range of free leaflets about the infection and lockdown.