Tag: Myalgic Encephalomyelitis

NICE has confirmed that the Chronic Pain Guideline and recommendations do not apply to people with a diagnosis of ME/CFS.

Dr Shepherd answers a question about the pneumonia vaccine and provides the information you need to make an informed decision.

The information in this new guide should be of help to people when managing post-Covid fatigue syndrome and post-Covid ME/CFS.

We will shortly be updating our free leaflet on the Flu Vaccine and M.E. But we hope this information proves helpful in the meantime.

This week 3 new research studies have been published and we highlight 2 of them.

The ME Biobank team with Dr William Weir are hoping to conduct research into Post-Covid and ME/CFS. Please register your interest in taking part.

Do you have a passion for M.E. research? We are seeking a suitable candidate to join our team and help report scientific advances to the patient community.

Paul Garner continues his BMJ Blog, explaining his experiences with Long-Covid and calls for appropriate guidance and support.

This letter is now available for anyone to download and share to help raise awareness of Post-Covid management and the similarities with M.E.

Fancy some northern humour? Take a look at Rich Davenport’s comic genius. Proceeds from his latest book kindly donated to the ME Association.

The responses from Chris Whitty at the Department of Health and Social Care and Stephen Powis at NHS England to ME Association concerns, were very disappointing.

“The NHS is urging people to exercise at a time when many, just like people with post-viral ME, need to rest, recuperate and pace themselves,” Countess of Mar.

With temperatures soaring in parts of the country, we consider ways that you can keep cool and help prevent an increase in symptom severities.

Kara’s brilliant album, recorded from her sickbed, is performing exceptionally well in the charts. Download your copy today!

This week we feature three new research studies including a critical review of genetic research ahead of the DecodeME study.

M.E. changed his mum from “being called Tigger because she was always so full of life” to someone who now has to count every ounce of energy used in case it runs out and leaves her floored for days.

We asked those who suffer with Severe M.E if they would like to submit their stories to be published on the ME Association website blog.

“It is incessant, inescapable torture. You are trapped. Completely powerless. You’re in agony with countless unbearable symptoms…”

We have updated the central index of ME/CFS published research for July, and include 4 new studies published this week.

Holly aged 9, has written about her mum, Chantalle, and explains what life is like being the daughter of a parent with M.E.