Tag: ME Research

This week 5 new studies have been published and and we highlight 3 of them.

This week we feature two published studies about ME/CFS which are about CBT and Mindfulness.

Severe ME features in the two studies published this week: suggestions for healthcare improvements and CPET testing that confirms poor exercise capacity.

We highlight and explain 5 of the 10 research studies from last week and update our central research index which is available to download for free.

A free leaflet all about the exciting DecodeME research study. It’s the largest ever study examining DNA in people with ME.

The £3.2 million study is jointly funded by the MRC and hopes to aid development of diagnostic tests and targeted treatments.

This week 5 new research studies have been published. We provide a lay summary of several of them.

Published letters in response to the DecodeME research announcement and recent articles. With Jeremy Hunt and Carol Monaghan.

Funding for the world’s largest genetic study into myalgic encephalomyelitis (M.E.), led by a partnership of patients and scientists, has been announced today.

Recruitment is now open and will run until 5.00pm on Monday 20 July. Join us and be part of something special!

In the last week, 4 new research studies about ME/CFS have been published.

“By adopting this resolution, Parliament gives voice to patients’ concerns and supports their legitimate requests for greater awareness and funding for research.”

There were two new research publications this week, and we’ve updated the MEA Research Index.

“Everyone is talking to everyone else and, with so many good people on our side, things will change for us.”

The project comprises a series of highly recommended films. The latest video is about Severe and Very Severe ME/CFS.

“There is abundant evidence that ME/CFS can follow apparently infectious illnesses of uncertain cause, or a clearly diagnosed infectious illness…”

The research bulletin highlights 2 of 4 new studies about ME/CFS published in the last week.

We provide support, reliable information, a voice when needed, and funding for medical research.

“Managing energy is the most difficult but important factor. My advice would be to try to establish a routine to get the best balance between sleep, activity and rest.”

“The GP’s I have seen treat everyone based on symptoms rather than the whole illness itself…”