The ME Association End of Week Research Round-up
This week we feature three new research studies including a critical review of genetic research ahead of the DecodeME study.
ME Research
Severe ME: Why is improvement subject to such harsh judgement and not celebrated?
“Having M.E. robs us of just about everything, but not the ability to be supportive or kind. We are a community, and it should be us against the world not us against each other.”
How it feels to have Very Severe M.E. by Ruth Braham
“It is incessant, inescapable torture. You are trapped. Completely powerless. You’re in agony with countless unbearable symptoms…”
The ME Association End of Week Research Round-up and Index Update
We have updated the central index of ME/CFS published research for July, and include 4 new studies published this week.
Meet The Scientist: Professor Chris Ponting – DecodeME
Chris Ponting talks about the DecodeME study that seeks to understand the causes of M.E. and could help advance the discovery of effective treatments.
The ME Association End of Week Research Round-up
This week 5 new studies have been published and and we highlight 3 of them.
The ME Association End of Week Research Round-up
This week we feature two published studies about ME/CFS which are about CBT and Mindfulness.
The ME Association End of Week Research Round-up
Severe ME features in the two studies published this week: suggestions for healthcare improvements and CPET testing that confirms poor exercise capacity.
The ME Association End of Week Research Round-up and Index Update
We highlight and explain 5 of the 10 research studies from last week and update our central research index which is available to download for free.
Free Leaflet: DecodeME – The Largest Ever Genetics Study!
A free leaflet all about the exciting DecodeME research study. It’s the largest ever study examining DNA in people with ME.
MRC: Largest Genetic Study into ME is Launched!
The £3.2 million study is jointly funded by the MRC and hopes to aid development of diagnostic tests and targeted treatments.
The ME Association End of Week Research Round-up
This week 5 new research studies have been published. We provide a lay summary of several of them.
The DecodeME Genetics Study: Letters to The Times
Published letters in response to the DecodeME research announcement and recent articles. With Jeremy Hunt and Carol Monaghan.
Patients, Scientists, and Advocates Celebrate £3.2m Funding for DecodeME, the Largest Ever ME/CFS DNA study!
Funding for the world’s largest genetic study into myalgic encephalomyelitis (M.E.), led by a partnership of patients and scientists, has been announced today.
Help Advance M.E. Research with an Application to the JLA Priority Setting Partnership
Recruitment is now open and will run until 5.00pm on Monday 20 July. Join us and be part of something special!
The ME Association End of Week Research Round-up | 19 June 2020
In the last week, 4 new research studies about ME/CFS have been published.
Myalgic Encephalomyelitis: MEPs call for more funds for research into complex illness | 19 June 2020
“By adopting this resolution, Parliament gives voice to patients’ concerns and supports their legitimate requests for greater awareness and funding for research.”
The ME Association End of Week Research Round-up and Research Index Update | 29 May 2020
There were two new research publications this week, and we’ve updated the MEA Research Index.
ME Awareness: “Ted Hughes once said: ‘Poetry needs a reason’. It would appear ME is my reason to write,” by Ffion | 29 May 2020
“Everyone is talking to everyone else and, with so many good people on our side, things will change for us.”
ME Awareness: ‘Dialogues for a neglected illness’ a Wellcome Project by Natalie Boulton and Josh Biggs | 27 May 2020
The project comprises a series of highly recommended films. The latest video is about Severe and Very Severe ME/CFS.