Tag: Living with ME

“I’ve got steadily worse, less and less able to work, missing out on all social outings, not able to take holidays due mainly to lack of finances…”

“Since the coronavirus started to spread I have cancelled all my support because I wanted to be completely isolated.”

“The distance round the allotments is approximately 340 yards, so it should take me 14 days to reach the 2.6-mile goal,” Juan Cortlett.

“I continue to be confined to the house. Sitting or standing up for more than 2 minutes makes me very lightheaded, so I spend 23 hours each day lying down.”

“I repeatedly pushed myself to return to work. Every time I ended up off sick again. I was bewildered by a situation where the will to be well failed every time.”

“I feel like I’ve missed so much. It’s like I’ve lived only half a life for 30 years, and then to cap it all in 2016 I was diagnosed with bowel cancer.”

“I have spoken to 111 several more times as my chest was worse but have been told to stay in bed for 1-2 more weeks and even minimise talking if necessary.”

We’d like to know how you have been coping with the Covid-19 lockdown. Please take part in the survey and Facebook discussion.

“While writing this I am again thinking, “Why me?” I do not know when I am going to stop thinking about his question, maybe I never will.”

“I was a fit healthy football-mad teenager and I enjoyed other sports too. All seemed well but then I caught scarlet fever…”

“I suspect that the losses faced by many people with M.E. are in some ways uniquely different to almost every other patient group.”

“Yes, school was good, no I wasn’t lying. I just wanted to die. I didn’t care, I was happy to just slip away to stop existing. I was ten years old!”

Claire has been running a popular pub-quiz online, and Helen is cutting her lovely hair – raising funds to support the MEA!

We have some incredible ‘champion bloggers’ who produce valuable content and insights. We’re looking for more writers to join the team.

A love story about a remarkable Telford family and their sailor dad, who went missing from home after being suddenly struck down with M.E.

Kate Thomson shares her story about she slowly returned to agility training and competition success.

MailOnline: Barely able to leave the house, told they are exaggerating and even that their ailment does not exist.

Jo Hunt from the University of Derby is looking to recruit people with M.E. for her research study.

A MODEL has revealed how her life was left “unrecognisable” after being blighted by a cruel energy-sapping disease that took eight years to diagnose.

A woman left bedbound with an incurable illness revealed her fight simply to be believed.