“My husband has taken on housework, shopping, cooking and the garden so is effectively my carer.”
Helen Leonard-Williams and Helen McLean entered the Headshave Hall of Fame after they let the scissors loose during ME Awareness Week.
“It’s been a long two years coming to terms with M.E. and it’s still a work in progress.”
“There is still such a stigma attached to M.E. that I rarely talk about it even if people ask – I’m worried by their reaction.”
A north Somerset couple have been swimming the length of the English Channel at home to help save a charity that supports their daughter.
“I guess my Christian faith sustains me even though a lot of the time I feel like I’m just holding on with my fingertips.”
“My daughter is so ill she has had to disengage with her education. She has been house-bound for three years and bed-bound for the majority of this time.”
“I’m struggling to come to terms with the fact I was not diagnosed for so long, and am angry that I suffered needlessly for 24 years.”
“I didn’t complete my degree but received sufficient qualifications to be ordained in September 2007.”
“M.E. still affects every aspect of my life. Attending school was a huge hurdle for me and one I still struggle with.”
“I’ve tried so many different methods to manage my symptoms. Medication helps to a degree alongside self-management techniques.”
“The GP’s I have seen treat everyone based on symptoms rather than the whole illness itself…”
“I’ve got steadily worse, less and less able to work, missing out on all social outings, not able to take holidays due mainly to lack of finances…”
The online course can be taken by anyone with a professional interest in ME/CFS and will hopefully increase awareness and understanding.
“The first big challenge was when I became wheelchair-bound 3 years ago. The next loss was when I could no longer read or watch a film.”
Dr Charles Shepherd contributes to a new article about Covid-19 and possible Post-Viral Fatigue Syndrome.
“It is incredible how strong she has been. I don’t think I would have coped with what Dee has experienced. She is my inspiration to keep on going and to support her on this journey.”
“I repeatedly pushed myself to return to work. Every time I ended up off sick again. I was bewildered by a situation where the will to be well failed every time.”
“I feel like I’ve missed so much. It’s like I’ve lived only half a life for 30 years, and then to cap it all in 2016 I was diagnosed with bowel cancer.”
“I have spoken to 111 several more times as my chest was worse but have been told to stay in bed for 1-2 more weeks and even minimise talking if necessary.”