PR & Fundraising Manager
MEA Content Manager
Chairman of The ME Association
Dr Charles Shepherd
Hon Medical Adviser MEA
Dr Katrina Pears
MEA Research Correspondent
Hi, I'm Char. I was born and raised in South Africa, lived in Italy for 10 years and then moved to the UK in 2010. Before falling ill I had a rewarding job working with disabled children, went to church twice a week, ate out with friends, exercised and regularly travelled back to Italy for holidays with my family. In 2015 I had a viral infection from which I never recovered. I have been housebound and mostly bed-tethered since, living with my younger sister who is my full-time carer. Now, when I have a pocket of energy and symptoms allow it, I enjoy either reading, writing, making digital graphics, raising awareness on social media, drawing or painting. I'm passionate about raising awareness of M.E. and empowering others to do the same by creating shareable graphics. Through my writing, I aim to help others adjust to their new normal after diagnosis. I hope to put into words what living with M.E. is really like so healthy people can better understand what we go through
Hi, I’m Clare. I was diagnosed with M.E. in 2005 when I had just started secondary school. I went from an energetic girl, who almost always had her head stuck in a book, to being almost bed bound for 3-4 years whilst studying for my GCSEs, and struggling to read much more than a few sentences, let alone a whole book. Between 2010 and 2017 I completed a degree part-time with The Open University. In 2019 I gained t he additional diagnosis of hypermobility. Physiotherapy began and to this day continues. I also have autonomic dysfunction, in the form of Postural Tachycardia Syndrome, with other forms of autonomic dysfunction still under investigation. Currently unable to work due to the sheer number of hospital appointments, I live with my parents at their home in Essex, UK. My blog is my way of sharing tips and tricks for living with chronic illness, sharing my journey and generally a way of helping me cope; it includes the highs and lows of living, within the limits dictated by chronic illness.
Hi I’m Daniel. I lived with M.E. throughout my adolescence for seven years in the 90s, missing most of my secondary education before going on to live a ‘normal life’ (other than my body rejecting high energy exercise!). I’m a qualified social worker, having worked in fostering and children’s disability services for ten years before I became ill again in January 2018. I live with my wife and two children in the farmhouse where I grew up in Northumberland and can go for weeks without experiencing civilisation! We have a dog called Hugo and a cat called Billy. I write reflectively about life with M.E. and enjoy reading, photography and writing poetry.
A personal blog about living with ME/CFS written by a long term patient. Ill since 1984, firstly mild then moderate, now severe. Advocating for all with ME/CFS.
Hi, I'm Emma, and I have been living with ME for the past eight years. I started my blog to help raise awareness of ME, by writing about how the illness has impacted on my life. I also share thoughts on how I'm learning to live well with it. Like many things when living with ME, blogging can be sporadic depending on my energy levels and/or other things that may have to take priority with my limited battery life! I live in Saddleworth with my husband, our six year old son and our very friendly Cockapoo! I have a passion for photography, and if you follow me on social media, you will know I am rather obsessed with taking photos of our local canal! Prior to ME, I worked as a Medical Representative for a large nutrition company, and I was also a qualified Fitness Instructor / Personal Trainer. I loved to travel, exercise, socialise with friends and keep active. In the first few years of the illness, I found it extremely hard to accept no longer being able to do these things. Despite the many challenges and difficulties of living with ME, I try my best to find joy in the little things and share my #joyin.. the seasons, and #mydailythankyou challenges across my social media and blog.
Evan Kendall Francis
Hi, I'm Ev. You might know me from the ME Essential if you're a member where I write a regular feature in the magazine. I've lived with mild-moderate ME for the last four years. I also suffer from small fibre neuropathy too. I try and share the highs and lows of my condition. You can follow my work over on The Cornerstone for Thoughts or @cornerstoneforthoughts over on my Instagram too. I look forward to sharing more with you.
Hi, I’m Hannah, an illustrator and blogger from an incredibly flat part of England, called the Fens. The main idea of my blog is to give me an easy way to keep friends and family informed about my road to recovery, and to help them understand my illness. This is primarily because whenever I have to talk to someone about her my situation, I suddenly become Monty Python’s black knight, cheerfully insisting I’m fine no matter how much I’m bleeding all over the forest floor. I am housebound with ME/CFS, and live with my parents/carers, and my cat, Jessicat Fletcher, who is part adorable, fluffy kitten, and part vicious hellbeast.
I’m a huge bookworm; a literature lover, bookishly bonkers and obsessed with amassing my own private library. I was diagnosed with M.E/CFS in 2015 and have also suffered with chronic depression and anxiety. Living with a chronic illness can be isolating and lonely; I think it’s important to write and share my experiences. Through this blog I hope to raise awareness for those struggling with invisible and chronic illness; those with mental health problems and those that struggle to keep fighting their own body day in and day out.
Hi I’m Jacqui. I live in Lancashire and I’ve suffered with chronic fatigue syndrome for about 3 years. I also have a bad back, Asthma, Raynaud’s Syndrome, Lupus SLE and Stevens-Johnson Syndrome. Before I got sick, I enjoyed a life of mountain biking, long mountainous hikes and drinking a good beer or 5 with friends. Nowadays I can’t ride my bike and I only do short flat walks. Of course, I still have a cheeky tipple sometimes. I also enjoy arts and crafts; comedy and I love a good suspense film. I turned 40 this year so I decided to start a blog. I aim to help and support fellow sufferers and to raise awareness of what it is like to live with chronic illness, the difficulties we face and the humorous side to our life. Yes, there is one. Recently I obtained a degree in Sports and Exercise Psychology, I'd like to blog about my experiences and therapies I have tried as it may benefit other people within the chronic illness community and hopefully, this may extend to some people who have ME/CFS. Our journey with chronic illness gets very heavy, so let’s keep it lighter and together we can keep looking forward.
Hi, I’m Jenny, a Scottish graphic designer in my mid-twenties. I’m particularly passionate about creating health content that is friendly, approachable, and honest. Chronic illness affects our lives as much as our bodies, and it’s time more people knew about it.
Hi, I'm Jo Moss, I live in Norwich, UK. I have a severe form of Myalgic Encephalomyelitis (ME), which was diagnosed in 2006, although I had been sick for many years before this. I started my blog ‘A Journey Through the Fog' to give myself a voice after years of being too sick to communicate. I write to educate, support, encourage, & raise awareness of this highly misunderstood illness, and to fight the discrimination and neglect with often face. I discuss all aspects of my health openly. I hope by sharing my experiences I can help others along the way, but most importantly, I want to let people know they are not alone. I'm also keen to show that, although life with ME can be tough, it can also be a life worth living. I love to read, and I'm passionate about music – I even started learning to play the guitar from my bed. I look forward to connecting with you.
My name is Karandeep and I have had chronic fatigue syndrome since I was 12 years old. It has now been 10 years since I first became ill and throughout this journey I've picked up my own tips for managing my condition and learned how to communicate my struggles with others, both of which I share on my blog. I've found art to be a powerful tool for explaining my illness to both people who do not experience it and those with the same condition looking to be understood. On my blog I use artwork to represent the emotion behind each post and help others understand what people with chronic illness go through on a daily basis. I hope to show others with my illness that they can live a happy and fulfilling life, and that creating art is an easy way to start.
Hi, my name is Kira and I am a young adult with multiple chronic illnesses such as Fibromyalgia, M.E., arthritis and various mental health conditions. I want to raise awareness for chronic illnesses through my blog, Instagram and Facebook pages and ensure that no one feels alone and people understand what it is like for people living with chronic illnesses. I am training to be a primary school teacher, my dream since I was young. I also enjoy reading, watching TV, meeting up with friends when I have the energy and spending time with my parents.
32 years living with M.E. Now finding meaning as writer and poet – one novel completed and seeking representation, another underway. I write poems and stories about our connection and disconnection to the world around us including living with M.E, spiritual and mental well-being, and social, political and environmental change. Once upon a time I worked in HR and still offer advice on employment issues if needed.
Hello! My name is Lisa but I’m also known as The Unlikely Gamer. I was diagnosed with M.E. in February 2020. When I fell ill, I rested a lot and then started playing Animal Crossing: New Horizons (ACNH) on the Nintendo Switch. Living life on my ACNH island really helped to get me through the early stages of adjusting to life with a chronic illness. I work part-time, still play ACNH, and rest (a lot!). I have created my blog as a space to share my experiences, increase awareness of M.E., and to show my support for the amazing M.E. Community.
Hi I'm Naomi. I wouldn't have started blogging if I hadn't have become unwell. I love blogging and it's something positive that come out of a negative in my life; the negative being becoming unwell. I have severe M.E alongside other chronic illnesses and disabilities. My blog features all aspects of who I am as I am more than my disabilities and they are just a portion of who I am. Some of the topics I blog about include disability awareness, lifestyle and disability lifestyle, wellbeing, craft tutorials, my hobbies and other interests, book and product reviews, fashion and beauty, collaborations and more. I see my blog as a platform to share my life and more importantly to give my disabilities like M.E a voice so that more people have a better understanding of the illnesses I have to help try and raise awareness and using my lived experience and turning that into something positive. Being a blogger with disabilities, especially having M.E is hard but I've found my ways to continue being able to blog as it's something I love and feel so passionate about doing.
Hi! I’m Liv, and I’ve been blogging about my chronic illnesses since 2020. I’m also studying part time for a Health Psychology masters, as I’d love to do more research into issues which affect people with chronic illnesses. When I’m not writing or studying, I’m usually reading or playing with my two dogs.
Hello! My name is Sakara. I'm an artist, photographer, and musician- all things I love to bring into my blogging. The title -Living on Lost Time- refers to the assumption that a year spent sick is a year lost, yet my life is happening in every moment that passes. I want to share some of this reality with anybody who stumbles across my work, but most of all I hope to provide comfort to disabled &/or chronically ill people who relate to any elements of my experience
Me, Myself and Chronic Illness is a personal blog of living with chronic illness when life is just beginning. My blog talks about living with multiple chronic illnesses in the form of M.E/CFS, Tourette's, Fibromyalgia, Undifferentiated Connective Tissue Disease (UCTD), PCOS and mental health. As well as hard hitting subjects such as symptoms, loss, work and relationships, I create blog posts on hobbies, films, books and crafting – because not everything is about illness.