Management – Treating ME: New & Experimental Approaches

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When it comes to using drugs in M.E., there is obviously no curative treatment at present and none on the horizon. In this leaflet, we review what is available now to help you manage this condition, possible new treatments, and what we might expect in the future.

Description

“When it comes to using drugs in M.E., there is obviously no curative treatment at present and none on the horizon.

“The prospect of having a curative treatment will almost certainly have to wait until research provides us with more substantial information as to what is really going wrong in this illness…”

Topics discussed in this leaflet, include:

  • How are new drugs assessed and brought into use?
  • How can we treat M.E. now and what might be available in the future?
    • Activity Management & Pacing.
    • Antidepressant drugs – for pain, sleep, sensory disturbances, and, depression.
    • Antiviral drugs – acyclovir &  valganciclovir (Valcyte).
    • Autonomic nervous system dysfunction – saline therapy.
    • Mental health & wellbeing.
    • Hormonal dysfunction – cortisolaemia & hydrocortisone.
    • Immune system dysfunction – Ampligen, Imunovir, Rituximab, & TNF inhibitors.
    • Muscle energy supplements – carnitine, co-enzyme Q10, creatine, magnesium, NADH & D-ribose.
    • Nervous system stimulation – modafinil.
    • Vitamins, Minerals, & Supplements.
    • Other drugs – Low-dose Naltrexone, nimodipine, galanthamine hydrobromide, & cyclophosphamide.
  • Prescribing new and experimental forms of treatment.
  • Looking to the future – Autologous bone marrow transplants, stem cell therapy, Faecal microbiome transplants, & vaccination against specific infections that trigger M.E.

The ME Association telephone helpline – ME Connect – is available every day of the year, during the hours of 10am-12noon, 2pm-4pm and 7pm-9pm. Please phone: 0344 576 5326 if you have any questions or would simply like to talk to someone who is there to listen.

Please note this is a download. You can read it on-screen and save to your computer, phone or other device and can attach it to any email you might need to send. But you will need access to a printer if you wish it printed.

ME CONNECT HELPLINE

0344 576 5326

Available every day of the week between these times: 10am - 12noon, 2pm - 4pm and 7pm - 9pm.

Calls cost the same as other standard landline numbers (starting 01 or 02). If you have a call package for your landline or mobile phone then calls will normally come out of your inclusive minutes.