Treating ME/CFS

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When it comes to using drugs in ME/CFS, there is obviously no curative treatment at present and no effective treatment for the key symptoms. In this leaflet, we review what is available now to help you manage this condition, possible new treatments, and what we might expect in the future.

When it comes to using drugs in ME/CFS, there is obviously no curative treatment at present and no effective treatment for the key symptoms. The prospect of having a effective treatments will almost certainly have to wait until research provides us with more substantial information as to what is really causing and perpetuating this disease. We consider, how new drugs are assessed and brought into use, and how we can treat ME/CFS at the present time and what might be available in the future.

Topics discussed in this leaflet, include: Activity Management & Pacing, Antidepressant drugs – for pain, sleep, sensory disturbances, and, depression, Antiviral drugs – acyclovir &  valganciclovir (Valcyte), Autonomic nervous system dysfunction – saline therapy, Mental health & wellbeing, Hormonal dysfunction – cortisolaemia & hydrocortisone, Immune system dysfunction – Ampligen, Imunovir, Rituximab, & TNF inhibitors, Muscle energy supplements – carnitine, co-enzyme Q10, creatine, magnesium, NADH & D-ribose, Nervous system stimulation – modafinil, Vitamins, Minerals, & Supplements, Other drugs – Low-dose Naltrexone, nimodipine, galanthamine hydrobromide, & cyclophosphamide, Prescribing new and experimental forms of treatment, Looking to the future – Autologous bone marrow transplants, stem cell therapy, Faecal microbiome transplants, & vaccination against specific infections that trigger ME/CFS.

Telephone Helpline

The ME Association telephone helpline – ME Connect – is available every day of the year, during the hours of 10am-12noon, 2pm-4pm and 7pm-9pm. Please phone: 0344 576 5326 if you have any questions or would simply like to talk to someone who is there to listen.

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