Covid-19 & ME/CFS – Post-Covid Fatigue Syndromes & Management

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The number of people struggling to recover their health following Covid-19 infection appears to be growing. Many of the symptoms are similar to ME/CFS. This comprehensive leaflet also provides helpful guidance and tips for managing Post-Covid Fatigue Syndrome. It has been updated with useful links to the very latest information.

Description

Updated: November 2020

“At present, we have no firm indication as to how many people are experiencing persisting ill health following COVID-19 infection.

“However, if current estimates of around 10% of people who were home managed are accurate, this could translate into around 60,000 people with some form of post-COVID ill health that has persisted beyond a month.

  • Long-COVID, post-COVID fatigue and post-COVID fatigue syndrome are all being used as diagnostic labels.
  • Many have debilitating fatigue as a primary symptom.
  • Some have respiratory, heart and other symptoms that are the same, or very similar, to the acute infection – i.e. breathlessness, palpitations, intermittent fevers, loss of taste or smell.
  • Others have symptoms that are very similar to those seen in post-viral fatigue syndromes that can follow any infective illness and may precede ME/CFS.
  • Some have a combination of post viral fatigue syndrome symptoms and acute COVID-19 infection symptoms.
  • In cases where post-COVID syndrome symptoms have persisted for more than three months, and are consistent with those of ME/CFS, a diagnosis of post-COVID ME/CFS should be considered.

“The ME Association has longstanding experience in the management of post-viral debility, post-viral fatigue syndromes and post-infection ME/CFS.

“The information and guidance in this leaflet should therefore be of help to people in relation to the management of post-COVID fatigue and some aspects of post COVID syndromes where they overlap with ME/CFS symptomatology…”

Telephone Helpline

The ME Association telephone helpline – ME Connect – is available every day of the year, during the hours of 10am-12noon, 2pm-4pm and 7pm-9pm. Please phone: 0344 576 5326 if you have any questions or would simply like to talk to someone who is there to listen.

Please note this leaflet is a download. You can read it on-screen and save to your computer, phone or other device and can attach it to any email you might need to send. But you will need access to a printer if you wish it printed.

ME CONNECT HELPLINE

0344 576 5326

Available every day of the week between these times: 10am - 12noon, 2pm - 4pm and 7pm - 9pm.

Calls cost the same as other standard landline numbers (starting 01 or 02). If you have a call package for your landline or mobile phone then calls will normally come out of your inclusive minutes.