The number of people struggling to recover their health following Covid-19 infection appears to be growing. Many of the symptoms are similar to ME/CFS. This comprehensive leaflet also provides helpful guidance and tips for managing Post-Covid Fatigue Syndrome. It has been updated with useful links to the very latest information.
Updated: November 2020
“At present, we have no firm indication as to how many people are experiencing persisting ill health following COVID-19 infection.
“However, if current estimates of around 10% of people who were home managed are accurate, this could translate into around 60,000 people with some form of post-COVID ill health that has persisted beyond a month.
- Long-COVID, post-COVID fatigue and post-COVID fatigue syndrome are all being used as diagnostic labels.
- Many have debilitating fatigue as a primary symptom.
- Some have respiratory, heart and other symptoms that are the same, or very similar, to the acute infection – i.e. breathlessness, palpitations, intermittent fevers, loss of taste or smell.
- Others have symptoms that are very similar to those seen in post-viral fatigue syndromes that can follow any infective illness and may precede ME/CFS.
- Some have a combination of post viral fatigue syndrome symptoms and acute COVID-19 infection symptoms.
- In cases where post-COVID syndrome symptoms have persisted for more than three months, and are consistent with those of ME/CFS, a diagnosis of post-COVID ME/CFS should be considered.
“The ME Association has longstanding experience in the management of post-viral debility, post-viral fatigue syndromes and post-infection ME/CFS.
“The information and guidance in this leaflet should therefore be of help to people in relation to the management of post-COVID fatigue and some aspects of post COVID syndromes where they overlap with ME/CFS symptomatology…”
- If you prefer you can download the leaflet here without registering via the website shop.
The ME Association telephone helpline – ME Connect – is available every day of the year, during the hours of 10am-12noon, 2pm-4pm and 7pm-9pm. Please phone: 0344 576 5326 if you have any questions or would simply like to talk to someone who is there to listen.
Please note this leaflet is a download. You can read it on-screen and save to your computer, phone or other device and can attach it to any email you might need to send. But you will need access to a printer if you wish it printed.