Personal Relationships – Intimacy & ME/CFS


Intimate relations can be important, but among those who are disabled by ME/CFS they can be challenging. This leaflet explores the issues and provides honest accounts from people with the condition, and it might help you to discuss similar issues with your partner.

Intimacy among those who are disabled by ME/CFS can be challenging, and it can be just as difficult to talk and to write about. But personal relationships are an important issue and it is
something that the ME Association has been asked to feature by those in the community.

We hope that by reading the introduction from Dr Lisa Dvorjetz (Hon. Psychology Adviser to the ME Association) and the honest accounts from people with ME/CFS it will help you to talk about any similar concerns with your partner. You might also benefit from some of the suggestions that are made, which could lead to a more fulfilling relationship.

Just as the experience of intimacy is a very personal one, people’s experience of ME/CFS is also  unique to them and their relationship. As we will read about in this leaflet, some members of the ME/CFS community have spoken about the impact that pain, energy levels, physical disability and emotional wellbeing have had on their sense of who they are as sexual beings.”

Telephone Helpline

The ME Association telephone helpline – ME Connect – is available every day of the year, during the hours of 10am-12noon, 2pm-4pm and 7pm-9pm. Please phone: 0344 576 5326 if you have any questions or would simply like to talk to someone who is there to listen.

Please note this leaflet is a download. You can read it on-screen and save to your computer, phone or other device and can attach it to any email you might need to send. But you will need access to a printer if you wish it printed.

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