NICE Clinical Guideline ME/CFS


This free leaflet provides information extracted from the recent draft of the new NICE clinical guideline. The guideline will be published in full at the end of April 2021.


The National Institute for Health and Care Excellence (NICE) has published the draft of the new clinical guideline for ME/CFS. The ME Association as a stakeholder in the guideline review process submitted its formal response to the draft at the end of December 2020.

“The new guideline will provide an essential framework to NHS and social care services that explains how people with ME/CFS should be treated when they need support from healthcare services.

“Indications are that the new guideline has the potential to be a significant improvement on the current version. The ME Association is cautiously optimistic that when the new guideline is finally published at the end of April it will herald a new beginning for relations between people with the condition and healthcare professionals who work in NHS primary and secondary care, and in social care services…”

This free leaflet aims to highlight the main points from the new draft guideline as they could prove helpful when in discussion with primary or secondary care providers ahead of the guidelines final publication in April.

Telephone Helpline

The ME Association telephone helpline – ME Connect – is available every day of the year, during the hours of 10am-12noon, 2pm-4pm and 7pm-9pm. Please phone: 0344 576 5326 if you have any questions or would simply like to talk to someone who is there to listen.

Please note this leaflet is a download. You can read it on-screen and save to your computer, phone or other device and can attach it to any email you might need to send. But you will need access to a printer if you wish it printed.


0344 576 5326

Available every day of the week between these times: 10am - 12noon, 2pm - 4pm and 7pm - 9pm.

Calls cost the same as other standard landline numbers (starting 01 or 02). If you have a call package for your landline or mobile phone then calls will normally come out of your inclusive minutes.