Explaining ME/CFS to Other People

This comprehensive leaflet includes a chart to help you record your symptoms and their severity, and the ME Association disability rating scale. We consider just how much of an added burden it can be when others in your life do not understand ME/CFS, and we examine ways in which communication can be improved.

“It is difficult when people don’t understand ME/CFS or how you are feeling. How can you explain to them how ill you really are? There may be one or two people in your life who just don’t understand ME/CFS or who don’t believe in the illness. This is hard so we have some ideas to help you explain this medical condition to other people.”

Telephone Helpline

The ME Association telephone helpline – ME Connect – is available every day of the year, during the hours of 10am-12noon, 2pm-4pm and 7pm-9pm. Please phone: 0344 576 5326 if you have any questions or would simply like to talk to someone who is there to listen.

Please note: Once you have made payment and checked out from the website shop, you will receive a confirmation email containing direct download links to your leaflets. Click the links and you can read your leaflets on-screen and save to your computer, phone, or other device. But you will need access to a printer if you wish them printed.