In this leaflet, we consider just how much of an added burden it can be when others in your life do not understand M.E., and we examine ways in which communication can be improved.
This comprehensive leaflet includes a chart to help you record your symptoms and their severity, and the ME Association disability rating scale.
We consider just how much of an added burden it can be when others in your life do not understand M.E., and we examine ways in which communication can be improved.
“It is difficult when people don’t understand M.E. They don’t understand how you are feeling. How can you explain to them how ill you really are?
“There may be one or two people in your life who just don’t understand M.E. or don’t believe in the illness. This is hard so we have some ideas to help you explain M.E. to people.
“Let’s look at some of the comments or questions you may get. These can be upsetting so we’d like to help by suggesting some responses for you…”
The ME Association telephone helpline – ME Connect – is available every day of the year, during the hours of 10am-12noon, 2pm-4pm and 7pm-9pm. Please phone: 0344 576 5326 if you have any questions or would simply like to talk to someone who is there to listen.
Please note this is a download. You can read it on-screen and save to your computer, phone or other device and can attach it to any email you might need to send. But you will need access to a printer if you wish it printed.