Prognosis, Permanency & Quality of Life

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This leaflet considers what to expect from a diagnosis of ME/CFS in terms of disability, improvement, recovery, and quality of life, based on research evidence and expert medical opinion.

This leaflet considers what to expect from a diagnosis of ME/CFS in terms of disability, improvement, recovery, and quality of life, based on research evidence and clinical opinion. Prognosis is a forecast, based on clinical experience and research, of the likely course of a medical condition. It can help determine what you might expect from a diagnosis. However, it is very difficult predicting outcomes in each individual, especially with a condition like ME/CFS that can affect people differently.

Topics discussed in this leaflet, include: Prevalence: How many people are affected by ME/CFS in the UK? Prognosis: What are the chances of recovering? What factors are believed to influence prognosis? Research into Prognosis, Quality of Life, What can I expect my life quality to be following diagnosis? Age and Illness Duration, Mental Health, Permanent Ill-Health, Professional Opinion – Dr Charles Shepherd, Research References.

Telephone Helpline

The ME Association telephone helpline – ME Connect – is available every day of the year, during the hours of 10am-12noon, 2pm-4pm and 7pm-9pm. Please phone: 0344 576 5326 if you have any questions or would simply like to talk to someone who is there to listen.

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