ME Association – Illness Management Report (2015)

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The 2015 Illness Management Report details the ME Association position on the controversial graded exercise and cognitive behavioural therapies and explains why we support the energy management approach known simply as Pacing.

Description

This 2015 comprehensive report, ‘No decision about me, without me’ was based on a large patient survey.

It examined patient reported outcomes for the controversial graded exercise and cognitive behavioural therapies and the preferred approach to illness management known simply as Pacing.

The results from this survey formed the basis for the ME Association’s position on the recommended approaches to management that had been a key part of the NICE clinical guideline.

Indeed, we used the results from the 2015 report to successfully advocate for a new clinical guideline which will now be published in April 2021.

NICE appear to have listened to what patients have been saying, and the new guideline recommends ‘energy management’ or Pacing as the main approach in ME/CFS.

The 2015 ME Association report is available as a free download and serves to quantify the rationale for the position we took on the three main illness management approaches.

Telephone Helpline

The ME Association telephone helpline – ME Connect – is available every day of the year, during the hours of 10am-12noon, 2pm-4pm and 7pm-9pm. Please phone: 0344 576 5326 if you have any questions or would simply like to talk to someone who is there to listen.

Please note this report is a download. You can read it on-screen and save to your computer, phone or other device and can attach it to any email you might need to send. But you will need access to a printer if you wish it printed.

ME CONNECT HELPLINE

0344 576 5326

Available every day of the week between these times: 10am - 12noon, 2pm - 4pm and 7pm - 9pm.

Calls cost the same as other standard landline numbers (starting 01 or 02). If you have a call package for your landline or mobile phone then calls will normally come out of your inclusive minutes.