ME/CFS – Is ME a Neurological Disease?


This leaflet summarises all the key clinical, research, and political evidence supporting a neurological classification for myalgic encephalopathy or encephalomyelitis (M.E.).

“This leaflet summarises all the key clinical, research and political evidence supporting a neurological classification for myalgic encephalopathy/encephalomyelitis (M.E.).

“The ME Association position is that myalgic encephalopathy – meaning problems with muscles (myalgia) and with brain function (encephalopathy) is the most suitable name for the disease at this time…

“We believe that myalgic encephalopathy (M.E.) should not be dismissed by neurology, and that neurologists have a key role to play in diagnosis and management, but we also believe that the cause of symptoms may stem from other systems in the body…”

Topics discussed in this leaflet include:

  • What do we mean by neurological?
  • The World Health Organisation classification
  • The UK Government’s position
  • Clinical evidence of neurological dysfunction
  • Research evidence of neurological abnormalities
  • Why do some doctors believe M.E. is not a neurological disease?
  • The NHS and the NICE clinical guideline

Telephone Helpline

The ME Association telephone helpline – ME Connect – is available every day of the year, during the hours of 10am-12noon, 2pm-4pm and 7pm-9pm. Please phone: 0344 576 5326 if you have any questions or would simply like to talk to someone who is there to listen.

Please note this leaflet is a download. You can read it on-screen and save to your computer, phone or other device and can attach it to any email you might need to send. But you will need access to a printer if you wish it printed.


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