The Case for Better NHS Services


In 2009, the ME Association submitted evidence to an All-Party Parliamentary Group Inquiry about NHS provision for people with M.E. This free leaflet explains what we felt should be provided by the NHS – it is still as relevant today as it was at the time.


“M.E. covers a wide range of clinical presentations and severities. This has to be appreciated when planning NHS service development and the training of those involved – doctors, nurses, occupational therapists, physiotherapists – in the clinical assessment and care of patients.

“Everyone with M.E. should be able to receive an early and accurate diagnosis, normally through the primary care system, along with access to a local hospital-based specialist service for further advice on either diagnosis or management, where necessary.

“The severely affected group require home-based management and designated in-patient beds for assessment and management…”

The 2009 MEA submission describes serious deficiencies and omissions in all of the above key aspects of assessment and care.

These remain as relevant today as they did at the time of the Inquiry, although we are hoping that the 2021 NICE clinical guideline will lead to improvements in NHS care and support.

Telephone Helpline

The ME Association telephone helpline – ME Connect – is available every day of the year, during the hours of 10am-12noon, 2pm-4pm and 7pm-9pm. Please phone: 0344 576 5326 if you have any questions or would simply like to talk to someone who is there to listen.

Please note this leaflet is a download. You can read it on-screen and save to your computer, phone or other device and can attach it to any email you might need to send. But you will need access to a printer if you wish it printed.


0344 576 5326

Available every day of the week between these times: 10am - 12noon, 2pm - 4pm and 7pm - 9pm.

Calls cost the same as other standard landline numbers (starting 01 or 02). If you have a call package for your landline or mobile phone then calls will normally come out of your inclusive minutes.