Dr Shepherd discusses the Covid-19 vaccination programme and issues relevant to people with ME/CFS
News | The ME Association - Part 3
ME Association writes to chief medical officer about vaccine priority for ME/CFS
The ME Association has written to Professor Chris Whitty, Chief Medical Officer, and the Joint Committee on Vaccination and Immunisation, to seek clarification on COVID-19 vaccine priority for people with ME/CFS Dear Professor Whitty and the Joint Committee on Vaccination and Immunisation, The ME Association is starting to hear from people with ME/CFS who are […]
Kara Jane joins legendary superstar Dolly Parton on BBC radio, 28 December 2020
Our singing superstar Kara Jane appears with Dolly Parton on the BBC local radio network on Monday, 28 December. Times vary: see our story.
‘Tis the season to take care of one another – happy Christmas everyone!
A Christmas wish to you all – look after each other and please… stay safe! See you one the other side of the New Year.
No illusion now! Here are two MEA-backed films coming soon to screens near you
The Applecart Arts Centre in Upton Park, East London, where ‘Illusions of Liberty’ will be staged next February.
Thank you for helping with our formal response to NICE!
The ME Association has submitted its formal response to NICE as part of the stakeholder consultation for the new ME/CFS clinical guideline.
ME Association slams lack of recognition for ME/CFS in new guideline on Long Covid
ME Association slams the absence of ME/CFS references in NICE’s new emergency guideline on Long Covid
New Leaflet: Pensions – obtaining an ill-health pension, prognosis & permanency in ME/CFS
We have published a new leaflet to help people who want to claim early retirement on the grounds of ill-health because of ME/CFS.
The Lancet still doesn’t seem to recognise the surge in post-COVID ME/CFS illness
We take issue with an editorial about the long-term effects of Long COVID in this weekend’s edition of The Lancet.
BMJ Rapid Response: Long-Covid & ME/CFS by Dr Nina Muirhead
Nina Muirhead, SAS Doctor Dermatology Surgery, Buckinghamshire Healthcare NHS Trust, Amersham Hospital, Whielden Street Extracts Re: Long covid: doctors must assess and investigate patients properly Dear Editor, I strongly echo this sentiment from my long COVID colleagues about assessing and investigating patients properly and would like to add that doctors must also diagnose patients properly. […]
COVID-19 vaccine eligibility, safety and ME/CFS – what we know so far
by Dr Charles Shepherd, Medical Adviser, ME Association With the start of vaccination against COVID-19 occurring this week, we are receiving queries about where people with ME/CFS will be on the priority list. The Joint Committee on Vaccination and Immunisation (JCVI) has produced a list of different groups of people in the order that they […]
Forward-ME call for health warning to be put on existing NICE guideline for ME/CFS
Influential campaign group calls for graded exercise warning to be put on existing NICE guideline for ME/CFS.
The ME Association ME/CFS Research Round-up
In the last week, 5 new studies have been published. We look at the prevalence of perineural cysts and multi-omics revelations in ME/CFS.
Keep it smart – but apart!
Please join our annual #GoBlue4ME campaign during ME Awareness Week this year. Contact our fundraiser to get launched with ideas and support.
David Webb: the races of his life – for the love of his life
David Webb is pouring his love for his wife into four major running events next year. Please help him raise money for the MEA.
New! ME/CFS Family Impact Survey by Dr Nina Muirhead & Cardiff University
Please complete this quick survey to help improve international understanding of how ME/CFS impacts patients and family members.
Manx Radio turn up the volume for a specialist ME/CFS service on the Island
Manx Radio supported the campaign for a local ME/CFS service with this easy-to-listen-to podcast.
We demand changes to ‘Observer’ article
We challenge some appalling psychobabble that appeared in an article in The Observer (Guardian.com) in an otherwise fairly good piece about ME/CFS.
The Big Give Christmas Challenge!
This is the final day of our Christmas Appeal, The matched funds have been used up. But donations to our Medical Education Campaign are still welcome.
Cards and paintings – please push the boat out a bit for the ME Association
Please make the MEA’s day! Buy these cards or a painting for Christmas.