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We support people with ME/CFS/PVFS & Long Covid

The ME Association has been providing expert help since 1978. We understand what living with ME/CFS/PVFS is like and we don’t think anyone should struggle alone.

As many as 265,000 people in the UK live with ME/CFS. It is a life-changing and indiscriminate neurological condition that affects adults and children from all socio-economic and ethnic backgrounds. It can lead to long-term disability and a lower quality of life than multiple sclerosis or cancer.

ME/CFS often presents as a complex post-viral fatigue syndrome (PVFS) triggered by an infection that dramatically impacts a person's ability to complete everyday tasks and to mobilise normally. Long Covid affects people in a similar way. There are no effective treatments but convalescence and appropriate management can help stabilise and improve functional ability, although full recovery in ME/CFS is rare.

  • We offer reliable and timely information using expert knowledge and have the largest range of literature covering all aspects of life with ME/CFS, and we campaign to raise awareness and bring about positive change.
  • We provide support with the ME Connect telephone helpline, membership, a magazine, newsletter, the website, literature, and by responding effectively to the many email and social media requests for help.
  • We fund biomedical research including the M.E. Biobank, so that we can better understand what causes and perpetuates this disease, and in the hope that an effective treatment can be found.
  • We arrange training for healthcare professionals, offer a medical magazine, and we are working with the NHS to implement the new NICE Guideline for ME/CFS.
  • We believe in collaboration and support Forward-ME, the CFS/ME Research Collaborative, the All-Party Parliamentary Group on ME, Chronic Illness Inclusion, and the NHSE Long Covid Collaboration.
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