THE NICE GUIDELINE ME/CFS
AUGUST 2021

It heralded a new beginning and was a guideline we could support, but NICE has paused publication at the last minute,” The ME Association

We are here to support people with ME/CFS & Long Covid

The ME Association is a national charity that supports thousands of people with ME/CFS each year in the UK. 

It is estimated that between 130,000 and 260,000 people in the UK are struggling to live with this debilitating condition.

ME/CFS is a neurological disease affecting adults and young people from all socio-economic and ethnic backgrounds.

It can lead to long-term disability and a lower quality of life than multiple sclerosis or cancer.

At least 25% of the people affected will be housebound or bedbound at any one time. Those with the most severe form of the disease will need 24-hour care.

For many, ME/CFS is a complex post-viral fatigue syndrome affecting many bodily functions that can occur at any time.

ME/CFS is known by several names e.g. Myalgic Encephalopathy – the name we prefer – Myalgic Encephalomyelitis, or Chronic Fatigue Syndrome.

We campaign to raise awareness of the inequalities affecting this large patient community and we aim to achieve respect and fair treatment for all.

We fund and support vital biomedical research and offer education and training for healthcare professionals who want to learn more about this often-misunderstood medical condition. 

During the Covid pandemic we have also been at the forefront of providing support and information about Covid-19 and the vaccine programme to those with ME/CFS and to people now affected by Long Covid.

We’re here for you! 

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