“I have spoken to 111 several more times as my chest was worse but have been told to stay in bed for 1-2 more weeks and even minimise talking if necessary.”
We’d like to know how you have been coping with the Covid-19 lockdown. Please take part in the survey and Facebook discussion.
“This provides an explanation for the common observation that ME/CFS patients often report a sharp decrease in the number of colds and other viral infections they experience…”
“While writing this I am again thinking, “Why me?” I do not know when I am going to stop thinking about his question, maybe I never will.”
“I was a fit healthy football-mad teenager and I enjoyed other sports too. All seemed well but then I caught scarlet fever…”
“I suspect that the losses faced by many people with M.E. are in some ways uniquely different to almost every other patient group.”
“Yes, school was good, no I wasn’t lying. I just wanted to die. I didn’t care, I was happy to just slip away to stop existing. I was ten years old!”
“I grieve for the old me, while managing the situation I am currently in, and looking into the future and questioning, will I ever be well enough?”
The Countess of Mar has decided to retire from the House of Lords, but will continue to work with Forward-ME.
The weekly research bulletin provides summary explanations of 3 new studies into ME/CFS and we’ve updated the central Research Index.
For ME Awareness, the ME Association will be featuring stories from people with M.E. every day throughout May.
This free download provides information to help in the understanding of Myalgic Encephalopathy.
The #GoBlue4ME Challenge has inspired two incredible events that meet all the requirements of the nationwide lockdown.
Post-viral fatigue is being reported following Covid-19 infection. We explain the issue and offer best management guidance.
ME Carers Connected can help put carers in touch with one another for mutual support and to share experiences.
Sarah Freeman has not been daunted by the coronavirus. She’s simply delayed her inspiring attempt at Ben Nevis until next year.
Ann Innes has written a new leaflet discussing all the benefit changes introduced during the pandemic.
The national 2.6 Challenge kicks off tomorrow and you’re getting ready for ME Awareness in May!
Dr Shepherd has updated the weekly bulletin on covid-19 and ME/CFS.
The weekly research bulletin provides summary explanations of 7 new studies into ME/CFS.