“Without doubt my biggest regret has been that I have not been able to have my own family.”
The research bulletin highlights 2 of 4 new studies about ME/CFS published in the last week.
“My husband has taken on housework, shopping, cooking and the garden so is effectively my carer.”
Helen Leonard-Williams and Helen McLean entered the Headshave Hall of Fame after they let the scissors loose during ME Awareness Week.
“It’s been a long two years coming to terms with M.E. and it’s still a work in progress.”
“There is still such a stigma attached to M.E. that I rarely talk about it even if people ask – I’m worried by their reaction.”
A north Somerset couple have been swimming the length of the English Channel at home to help save a charity that supports their daughter.
“I am reading materials about pacing and CFS/ME and listening to the CFS/ME community.” Prof. Paul Garner.
We are launching a new leaflet and an update to add to the range that we have published since the very beginning of the pandemic and national lockdown.
We provide support, reliable information, a voice when needed, and funding for medical research.
“I guess my Christian faith sustains me even though a lot of the time I feel like I’m just holding on with my fingertips.”
“My daughter is so ill she has had to disengage with her education. She has been house-bound for three years and bed-bound for the majority of this time.”
“I’m struggling to come to terms with the fact I was not diagnosed for so long, and am angry that I suffered needlessly for 24 years.”
“I didn’t complete my degree but received sufficient qualifications to be ordained in September 2007.”
“M.E. still affects every aspect of my life. Attending school was a huge hurdle for me and one I still struggle with.”
“The most frustrating aspect of sleep is the frequent inability to enter deep sleep. It feels like I only ever dream, and it is exhausting.”
“What I am suggesting is that, however people refer to M.E., however people experience it, chronic fatigue is not the same thing.”
“I’ve tried so many different methods to manage my symptoms. Medication helps to a degree alongside self-management techniques.”
“To be a disabled person does not mean that you must solely be a wheelchair user or someone with a physical deformity.”
“Managing energy is the most difficult but important factor. My advice would be to try to establish a routine to get the best balance between sleep, activity and rest.”