In response to a letter from Drs. Shepherd and Weir, NICE produced a statement about graded exercise therapy for Post-Covid management.
Dr Anthony Fauci from the NIH in America, made an important statement about Post-Covid Syndrome and ME/CFS.
Severe ME features in the two studies published this week: suggestions for healthcare improvements and CPET testing that confirms poor exercise capacity.
New Statesman: For #LongCovid sufferers – around 5 per cent of those who catch the disease – debilitating symptoms drag on interminably.
During the covid-19 lockdown, have you felt confident in the NHS’s ability to provide appropriate care and support as a person with ME/CFS?
The Express: Coronavirus sufferers may be experiencing a “post-Covid syndrome” according to expert Dr Charles Shepherd.
We highlight and explain 5 of the 10 research studies from last week and update our central research index which is available to download for free.
The uncertainty surrounding recovery from Covid-19 is something that we hope is being discussed within the NHS and Government, but pacing and self-management remain the only options for many people.
A free leaflet all about the exciting DecodeME research study. It’s the largest ever study examining DNA in people with ME.
We update our general leaflet on Covid-19 and ME/CFS and this is reproduced below along with all our range of free leaflets about the infection and lockdown.
“Too often we see fractures within the ME/CFS Community that are causing incredible damage to the very people who are on our ‘team’.”
The £3.2 million study is jointly funded by the MRC and hopes to aid development of diagnostic tests and targeted treatments.
This week 5 new research studies have been published. We provide a lay summary of several of them.
Published letters in response to the DecodeME research announcement and recent articles. With Jeremy Hunt and Carol Monaghan.
The ME Association said many people are asking whether or not their post-Covid fatigue could be developing into ME.
The new and influential NICE guideline will be sent to stakeholders for review in November before publication on 21 April 2021.
Paul Garner, Professor at the Liverpool School of Tropical Medicine, talks about those who have not recovered from Covid-19.
Funding for the world’s largest genetic study into myalgic encephalomyelitis (M.E.), led by a partnership of patients and scientists, has been announced today.
Recruitment is now open and will run until 5.00pm on Monday 20 July. Join us and be part of something special!
In the last week, 4 new research studies about ME/CFS have been published.