The first announcements about this month’s ME Awareness Week from 10th to 16th May will crackle out over the airwaves from a radio transmitter in the Scottish Lowlands today. Behind …
Radio ham George hopes to go global for this month’s ME Awareness Week Read More »
Russell Fleming, Content Manager, ME Association We were contacted this week by a supporter who had fought very hard to try and get ME/CFS recognised as a neurological condition and …
Article by Grace Marner The ME Association says it’s a postcode lottery as to whether GPs consider a condition as being ‘at risk’ from coronavirus. Dr Shepherd and Hannah from …
People with underlying health conditions in Sussex STILL unable to book Covid jabs Read More »
By Helen Baxter, Nigel Speight, William Weir Abstract Very severe Myalgic Encephalomyelitis (ME), (also known as chronic fatigue syndrome) can lead to problems with nutrition and hydration. The reasons can be …
Research: Life-Threatening Malnutrition in Very Severe ME/CFS Read More »
Emma Jefferies, Social Media Manager, ME Association The ME Association will be focusing on Health and Social Care for ME Awareness Week 2021 (from Monday 10 May) and the pending …
ME Awareness Day: Let’s all pause to #RememberME – From Midday 12 May 2021 Read More »
Looking at Kathryn Turner conducting her online Dancefit class, you wouldn’t think she had a care in the world! So why did 40 people turn up for her short Zoom …
When the dancing stops, Kathryn’s always there for her mum Read More »
Two friends, who’ve played football in the same teams since childhood, will be walking 32 miles along the Gloucester and Sharpness Canal to raise money for the ME Association on …
Soccer buddies take on 32-mile canal hike for the ME Association Read More »
Tributes have been paid to John Brodrick, a past chairman of the ME Association known for ‘getting things done’, who has died after a long illness, aged 82. John volunteered as …
John Brodrick: a past chairman of the ME Association known for getting things done Read More »
Dr Charles Shepherd, MEA and APPG on ME Secretariat Linking in to the APPG on ME meeting on Monday this week, where I briefed MPs and members of the House …
The 225ft tower of Gloucester Cathedral will be lit up blue for ME Awareness Week from May 10 to May 16 – thanks to the pioneering work of Chantelle Parry, founder …
The goulash of osteopathy, life coaching, neurolinguistic programming, and positive psychology is also attracting Long Covid sufferers David Tuller David Tuller has written a about the Lightning Process in a …
Russell Fleming, Content Manager, ME Association The ME Association decided to issue this position statement on exercise and activity management in ME/CFS (and Long Covid) in light of recent discussions …
ME Association Statement on Exercise in ME/CFS and Long Covid Read More »
Russell Fleming, Content Manager, ME Association BBC Newsnight on Thursday 8th April entered controversial territory when it discussed the treatment of Long Covid and ME/CFS. The programme focused on the …
ME Association Statement re: BBC Newsnight report on Long Covid & ME/CFS Read More »
Russell Fleming, Content Manager, ME Association This is a new review providing recommendation for the clinical management of people with Long Covid within the NHS. It was produced by Martine Nurek from …
Recommendations for Patients with Post COVID-19 Condition Read More »
A couple who’ve set up a new online shop for their home-made soap business have promised to give an ever-lasting cut of their profits to the ME Association – to mark …
Russell Fleming, Content Manager, ME Association What do you want future research to investigate? Do you have questions about ME/CFS that you wish were answered? The JLA Priority Setting Partnership …
JLA PSP: Help Shape the Future of ME/CFS Research Read More »
George Monbiot in The Guardian This is a brilliant video from George Monbiot – thank you so much!Good timing as well – because the APPG on ME will be discussing …
George Monbiot on Long Covid, Chronic Fatigue Syndrome & Misogyny Read More »
By Joanna Lane with comment from Dr Charles Shepherd I don’t have ME, but I have something important to say that I hope may help people who have. Twelve years ago, our 31-year-old son Christopher …
What is hypopituitarism and could it be an alternate explanation for ME/CFS? Read More »
From the Sunday Post in Scotland published April 11th 2021 Scots suffering Long Covid fear a postcode lottery means effective diagnosis and treatment depends on where you live and on …
New position statement from the American Autonomic Society on PoTS and Long Covid Abstract While the acute impacts of COVID-19 were the initial focus of concern, it is becoming clear …
Postural Orthostatic Tachycardia Syndrome (PoTS) in Long Covid & ME/CFS Read More »
