News

This week 5 new studies were published. We highlight 3 that include neuroimaging reviews, hypermobility and intracranial hypertension, and the economic cost of ME/CFS in Australia.

Having a consultant physician as part of a ME/CFS clinical team is essential. This is a fantastic opportunity to join one of the best NHS services in the country.

Lou Wildish has put a selection of her unique art into a new online gallery and is giving a donation from each sale to the ME Association.

“I try to walk a mile a day. There are some days that my legs and brain don’t quite connect. That’s when it becomes quite interesting!”

We have updated the central research index to provide you with all the relevant studies into ME/CFS. An interesting study was published in the last week from the ME Biobank team.

This letter is now available for anyone to download and share to help raise awareness of Post-Covid management and the similarities with M.E.

This week, three new research studies about ME/CFS have been published and we highlight two of them.

Fancy some northern humour? Take a look at Rich Davenport’s comic genius. Proceeds from his latest book kindly donated to the ME Association.

We highlight 3 studies from last week’s 6 ME/CFS research publications.

The responses from Chris Whitty at the Department of Health and Social Care and Stephen Powis at NHS England to ME Association concerns, were very disappointing.

“The NHS is urging people to exercise at a time when many, just like people with post-viral ME, need to rest, recuperate and pace themselves,” Countess of Mar.

With temperatures soaring in parts of the country, we consider ways that you can keep cool and help prevent an increase in symptom severities.

It is an authoritative publication representing the most comprehensive, evidence-based summary currently available.

Kara’s brilliant album, recorded from her sickbed, is performing exceptionally well in the charts. Download your copy today!

The serious concerns expressed by the MEA about the Covid recovery guideline resulted in a reply from NHS England and an article in The Times newspaper.

Written by O. Ashton – 3.1.2020 I’m Tired… In September 2018 I came down with glandular fever, I felt tired and had a sore throat, a fever and a cough.  I was 12 years old and attended full-time education in a mainstream school. My GP told me I would get better and I should sleep […]

Caring for someone with Very Severe M.E is both an honour, a privilege and a responsibility so difficult it is similar to walking through a field of landmines, not knowing if the next step you take no matter how important and necessary is going to have devastating consequences. My name is Clare and I was […]

This week we feature three new research studies including a critical review of genetic research ahead of the DecodeME study.

The 8th August is Understanding & Remembrance Day for Severe Myalgic Encephalomyelitis, also known as Severe ME Day. It is held on the birthdate of Sophia Mirza, who was the first person in the UK to have their cause of death registered as Very Severe ME. Unfortunately, she is not the only one who’s died […]

M.E. changed his mum from “being called Tigger because she was always so full of life” to someone who now has to count every ounce of energy used in case it runs out and leaves her floored for days.