Please note that a permanent link to this policy statement will shortly be provided on this website, and the statement will also appear in the July issue of our quarterly ME Essential magazine. THE MEA RAMSAY RESEARCH FUND (RRF) One of the many scandalous aspects of ME/CFS is the fact that research into the underlying […]
News | The ME Association - Part 208
From The Times, May 23 2007 by Mark Henderson, Science Editor
The longest-ever expedition to be mounted to raise funds for ME research will start at the beginning of April next year – when former British Army captain Ed Stafford and professional outdoor instructor Luke Collyer take on the world’s second largest river. They plan to take a year to walk 4,000 miles from the source […]
MAY BE REPOSTED COMMITTEE ROOM 17: HOUSE OF COMMONS
The following statement was posted on the official website of the Group for Scientific Research into ME, led by Dr Ian Gibson MP, on Friday, 18 May:
Group on Scientific Research into ME 8th May 2007 4pm Room W2 HOC Agenda
If anyone intending to come to the New Horizons: International Conference on ME/CFS Biomedical Research http://www.meresearch.org.uk/newhorizons.html (on Friday 25th May 2007, at the Edinburgh Conference Centre, part of the campus of Heriot-Watt University, Edinburgh, UK) has not yet registered, please register by email or phone ASAP. The registration fee is £60, and included in this […]
The Independent Extra : Education First Letter Thursday 17 May
We have just been notified of this Italian-language ME/CFS website and chat forum. CFSItalia The site administrator tells us: CFSItalia’s aim is to brief patients, health care professionals and people with suspected CFS (Chronic Fatigue Syndrome) by publicising studies, research, centres of diagnosis addresses, recent findings, pathogenesis hypotheses, treatments and their results. In the Forum, […]
Alex Fergusson has been elected as the new Presiding Officer of the Scottish Parliament. Mr Fergusson, who has a son with ME, was deputy convenor of the Parliament’s Cross Party Group on ME before Scotland went to the polls on May 3.
Brighton MP David Lepper tabled a question about the draft NICE guideline on clinical practice in ME/CFS. He received a written answer from Minister for Public Health Caroline Flint on May 14.
A total of 25 ME charities and organisations have now signed up to a joint statement on the recently published NHS Plus occupational health guidance for Chronic Fatigue Syndrome, which appears below. The statement has been sent to Dr Ira Madan, clinical standards director of NHS Plus, and was discussed at the All Party Parliamentary […]
MAY BE REPOSTED I am investigating therapeutic claims relating to ME/CFS that are being made in the UK for a ‘natural’ product known as Activive. I would be be grateful for any information from anyone who has ever bought or used this product. I understand that the country of origin for this […]
BBC Online, 10 May 2007: The public has been warned to take extra precautions against ticks as the warm weather heralds a peak in numbers of the blood-sucking parasites
Minute of the Meeting of the APPG on M.E. held 1.30pm, Thursday 22 February 2007, Committee Room 17, House of Commons (approved for circulation).
A new ME website has been set up in Malta by Rebecca Sultana.
The ME Association’s much praised response to the draft NICE guideline – first published in the December 2006 issue of our quarterly ME Essential magazine – is now available on this website to read and to print off. The document is 6,650 words in length and was written by our medical adviser Dr Charles Shepherd […]
To mark ME Awareness Day on Saturday 12th May 2007 Shropshire and Wrekin ME Support will launch their Development Plan on the original iron bridge in Ironbridge, Shropshire. Liz Lynne MEP, one of the group’s patrons, will attend.
ME group blasts NHS by Marie Levy, Evening Gazette People with ME on Teesside have been deserted by the NHS according to a North-east campaign group.
The ME Association is pleased to announce two new Patrons: