News

Chairman’s Report to the AGM

Neil Riley presented his first report as Chairman of the Board of Trustees to the Annual General Meeting in Bicester on 17 February, 2007. This is what he had to say:

Board meeting, EGM and AGM summaries

MAY BE REPOSTED This is a brief summary of key issues that were discussed at the February 2007 meeting of the ME Association Board of Trustees. A full meeting was held on Friday afternoon (February 16th) at the MEA Head Office in Buckingham and on Saturday morning (17th) at the Littlebury Hotel, Bicester prior to […]

APPG on ME – NICE changes speakers

We have just had it confirmed that Professor Sir Michael Rawlins, chairman of the National Institute for Health and Clinical Excellence, will be unable to attend the meeting of the All-Party Parliamentary Group on ME at Westminster on Thursday (February 22).

Genes study resumes today

A vital ME Association-funded study into the genetic origins of ME/CFS enters a new phase today (Monday, February 12) – when a full-time research assistant joins the team at Glasgow Caledonian University.

What is an encephalopathy?

The decision by researchers on the American CFS Name Change Advisory Board (meeting in Florida on 12 January 2007) to agree that a new name should be adopted for chronic fatigue syndrome (CFS) is obviously very welcome. At the same time they have expressed support for the use of the term ME, as myalgic encephalopathy […]

Gibson Report: key points raised by The ME Association

This is a summary of key points raised by The ME Association during the meeting at the House of Commons on Tuesday 6 February to discuss feedback to the Gibson Inquiry Report. A detailed summary of the meeting is being prepared for the March issue of ME Essential magazine.

Minister makes it a musical 50th for ME

Instead of having a traditional 50th birthday for family and friends, the minister of the United Reformed Church in the Scottish fishing port of Fraserburgh will be having a musical celebration instead.

Daily Mail, February 6 (“Lightning Process”)

SAVED FROM A LIVING DEATH by Esther Rantzen For 14 years, Esther Rantzen’s daughter Emily had her life destroyed by ME. Trapped in a wheelchair, wasting away, she wanted to die. Now, thanks to radical "mind over matter" therapy, she’s cured herself.

National ME organisations respond to DWP guidance

STATEMENT BY NATIONAL ME ORGANISATIONS ON DWP CFS/ME GUIDANCE DOCUMENT (VERSION 9) We are pleased that the DWP has acknowledged that there has been a 'black hole' with ME/CFS, resulting in many decision makers/adjudicators having trouble making correct allocations, and have agreed to address this. 

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