News

Ewan Dale presented his annual report as Hon Treasurer to the Annual General Meeing at Bicester on 17 February 2007. This is what he had to say:

Neil Riley presented his first report as Chairman of the Board of Trustees to the Annual General Meeting in Bicester on 17 February, 2007. This is what he had to say:

MAY BE REPOSTED This is a brief summary of key issues that were discussed at the February 2007 meeting of the ME Association Board of Trustees. A full meeting was held on Friday afternoon (February 16th) at the MEA Head Office in Buckingham and on Saturday morning (17th) at the Littlebury Hotel, Bicester prior to […]

Vice-chair of The ME Association, Rick Osman, will be running the London Marathon for The MEA again on 22 April 2007.

We have just had it confirmed that Professor Sir Michael Rawlins, chairman of the National Institute for Health and Clinical Excellence, will be unable to attend the meeting of the All-Party Parliamentary Group on ME at Westminster on Thursday (February 22).

Meeting of the All Party Parliamentary Group on ME – to be held on Thursday 22nd February, 1.30 to 2.30pm, Committee Room 17, House of Commons

A vital ME Association-funded study into the genetic origins of ME/CFS enters a new phase today (Monday, February 12) – when a full-time research assistant joins the team at Glasgow Caledonian University.

The decision by researchers on the American CFS Name Change Advisory Board (meeting in Florida on 12 January 2007) to agree that a new name should be adopted for chronic fatigue syndrome (CFS) is obviously very welcome. At the same time they have expressed support for the use of the term ME, as myalgic encephalopathy […]

This is a summary of key points raised by The ME Association during the meeting at the House of Commons on Tuesday 6 February to discuss feedback to the Gibson Inquiry Report. A detailed summary of the meeting is being prepared for the March issue of ME Essential magazine.

Instead of having a traditional 50th birthday for family and friends, the minister of the United Reformed Church in the Scottish fishing port of Fraserburgh will be having a musical celebration instead.

Commons' Health Committee press notice, 2 February 2007

For the second year running, the annual "ME People's Day Event" in central London during ME Awareness Week is being organised by Di Newman, of the Peterborough ME and CFS Self-Help Group.

Dozens of people have used this site’s search tool to find out more about the "Lightning Process", which was featured in the Daily Mail on February 6 and in other large articles this month in the regional press. The ME Association’s position on the subject is as follows:

SAVED FROM A LIVING DEATH by Esther Rantzen For 14 years, Esther Rantzen’s daughter Emily had her life destroyed by ME. Trapped in a wheelchair, wasting away, she wanted to die. Now, thanks to radical "mind over matter" therapy, she’s cured herself.

For details about this informal and friendly group, which started in Glasgow just before Christmas, please click here

Minutes of the meeting of the All Party Parliamentary Group on M.E. Held 1.30pm, Thursday 16th November 2006 Committee Room 17, House of Commons

Sir Michael Rawlins, Chairman, National Institute for Health and Clinical Excellence, will appear before the next All-Party Parliamentary Group on M.E.

STATEMENT BY NATIONAL ME ORGANISATIONS ON DWP CFS/ME GUIDANCE DOCUMENT (VERSION 9) We are pleased that the DWP has acknowledged that there has been a 'black hole' with ME/CFS, resulting in many decision makers/adjudicators having trouble making correct allocations, and have agreed to address this. 

As already notified to members in our ME Essential quarterly magazine, we shall be holding our Annual General Meeting on 17 February 2007.

MAY BE REPOSTED The ME Association has just received this communication from NICE