News

Melvin Ramsay Society Meeting – Friday 20 April 2007

MAY BE REPOSTED The Melvin Ramsay Society is a medical and scientific study group. The membership, which consists of doctors and other health professionals who believe that ME/CFS is a physical illness, organise scientific and clinical meetings and seminars which we pay for out of our membership fees. The next meeting of the Melvin Ramsay […]

Scottish Cross-Party Group: legacy paper

Legacy paper The Cross Party Group on M.E. (M.E. as defined by the World Health ,Organisation) will formally break up before the Scottish Parliament elections in May 2007. The Group leaves the following legacy paper to the Cross Party Group that will reform following the elections so that the work that has been carried out […]

Ticked off – The Scotsman. April 7

Ticked off By Alastair Robertson MY WIFE’S BEST FRIEND from Somerset writes to say her dogs have had ticks ALL winter. Can you beleeeeve it!!!! Like a great many women with dogs, and some, I am sure, without, my wife’s best friend writes in exclamation marks. I don’t mind; it’s very nice that she writes. […]

Cross Party legacy for 27,000 Scots with ME

Before Members of the Scottish Parliament stood down earlier this week, 2 April 2007, prior to elections on 3 May, a number of Parliamentary groups and committees prepared legacy papers to inform the work of the next session. One of the first of these to publish was the Cross Party Group on M.E. (myalgic encephalomyelitis […]

David Sanborn and Post-Polio Syndrome

In an interview in the March edition of US jazz monthly Downbeat, famed jazz saxophonist David Sanborn (61) revealed that he has been increasingly suffering from Post-Polio Syndrome. He was diagnosed with Polio aged three, in St Louis, and spent a year in an iron lung followed by 2 years in bed. During this convalescence, […]

Ampligen update

Source: Philadelphia Business Journal Date:   March 30, 2007 Author: John George <jgeorge@bizjournals.com>  Read article on Philadelphia Business Journal website Hemispherx finalizing fatigue drug filing

New website in India

From Vincent Costa <vincentdcosta@rediffmail.com>: I would like to announce a new Web site – ME India. It’s the first one in India for people with ME It hopes to bring about the awareness of M.E to the very people who suffer from it, as we estimate it to be about 4 million or so in […]

Reading Evening Post, 27/3/07 (Nisai online learning)

Virtual school gives Lorna reason in life A YEAR ago teenage ME sufferer Lorna Woodman was stuck in her bedroom wondering if she would ever get a chance to study again. Now the 18-year-old is about to take her first round of AS-levels after signing up to an online school that allows her to study […]

Carlisle group goes public

Carlisle’s new support group for people with ME/Chronic Fatigue Syndrome got off to a flying start on Monday (March 26) – when dozens of visitors turned up for its first public event at the University of Central Lancashire’s Cumbria Business School.

Malvern Gazette, March 19

Sports-mad boy’s battle with ME By Tarik Al Rasheed JUST over a year ago Jordan Vautrinot was a healthy sports-mad 11-year-old boy. But now he needs a wheelchair, can no longer attend school and finds spending even a short while out of bed absolutely exhausting.

Galloway News, 15 March (future of D+G ME Network)

ME group faces uncertain future A SUPPORT group for ME sufferers is facing an uncertain future. The Dumfries and Galloway ME network has over 250 members across the region. But failure to secure funding from the council’s voluntary sector sub-committee has left the group extremely concerned.

Scottish Cross-Party Group on ME

Yesterday at Holyrood, in its final meeting before the Scottish election, the Cross Party Group on ME (CPG) agreed the final wording of a policy document for its work when it is reformed in June. Members of the Scottish Parliament also agreed their final correspondence with individuals and committees in support of current strategies.

House of Lords, March 13 (NHS Plus) (1)

 WRITTEN ANSWER The Countess of Mar asked a question about the status of the series of NHS Plus documents Occupational Aspects of the Management of Chronic Fatigue Syndrome: A National Guideline once the NICE clinical practice guideline has been published. Department of Health minister Lord Hunt replied.

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