DWP BENEFITS DURING COVID-19
Meeting Agenda On the Agenda for the next meeting will be an update on what will be happening to these medical assessments over the coming months. For the past year …
Open Letters to Healthcare Professionals from people with ME/CFS – Part 3 Anne and Maryjane
Against the background of a new NICE Clinical Guideline for ME/CFS (18 August 2021), which has the potential to improve healthcare provision for people with this condition, we have been …
Open Letters to Healthcare Professionals from people with ME/CFS – Part 2 Nicola and Jules
Against the background of a new NICE Clinical Guideline for ME/CFS (18 August 2021), which has the potential to improve healthcare provision for people with this condition, we have been …
Open Letters to Healthcare Professionals from people with ME/CFS – Part 1 Kate and Margaret
Against the background of a new NICE Clinical Guideline for ME/CFS (18 August 2021), which has the potential to improve healthcare provision for people with this condition, we have been …
The ME Association ME/CFS (& Long Covid) Weekly Research Round-up
The weekly research round-up now includes recent publications about ME/CFS and about Long Covid. We highlight several studies that have particularly caught our interest and follow these with the full …
The ME Association ME/CFS (& Long Covid) Weekly Research Round-up Read More »
Guest blog: “I’m learning to use the word ‘fatigue’ as tiredness doesn’t leave you collapsing on the floor and crying like a baby.”
For me this is hard. Putting down in words how I feel for others to read, when I spend so much of my life trying to hide my feelings because …
Early Day Motion on the Retirement of Countess of Mar as Chair of Forward-ME
EDM (Early Day Motion) 90:Retirement of the Countess of Mar as Chair of Forward-ME Motion Text: That this House: Marks the retirement of the Countess of Mar as the Founding Chair …
Early Day Motion on the Retirement of Countess of Mar as Chair of Forward-ME Read More »
Mail Online: My canine carer can even tell when I’m about to faint
After years of ill health nearly destroyed her, Libbi Mattick rediscovered her freedom thanks to her assistance dog Sparrow. She tells Kate Thompson about the amazing four-legged saviour who fetches help, …
Mail Online: My canine carer can even tell when I’m about to faint Read More »
ME Association Statement: Aripiprazole (Abilify) & ME/CFS
We received reports that a small number of people with ME/CFS in the UK and overseas are apparently being prescribed or are obtaining an antipsychotic drug called Aripiprazole (trade name …
ME Association Statement: Aripiprazole (Abilify) & ME/CFS Read More »
The ME Association Champion Bloggers
The ME Association is incredibly lucky to have a wonderful group of people who write honest and emotive blogs about ME/CFS and we call then the ‘Champion Bloggers.’
Isle of Man Minister savaged for delays in setting up specialist M.E. service
The Minister for Health and Social Care on the Isle of Man has been savaged for failing to provide a specialist service for M.E. sufferers – during a week of …
Isle of Man Minister savaged for delays in setting up specialist M.E. service Read More »
Cambridge Dad living with ME becomes so exhausted he can’t walk downstairs – with Dr Charles Shepherd
Mark started getting symptoms of ME when he was in his 30s, now in his 60s he wants to open up about his debilitating condition. Dr Charles Shepherd talks about …
New Leaflet: Personal Relationships – Intimacy in ME/CFS
All humans have a fundamental need to feel connected to and build intimate relationships with others. The diagnosis of a chronic health condition can severely impact the way we view ourselves as well as how we relate to our partners and loved ones…
The Yorkshire Three Peaks – Karen’s challenge to remind us of Julie
Karen Buckley has challenged herself to climb the Yorkshire Three Peaks at the end of May to raise money for the ME Association – because she’s been appalled at how badly …
The Yorkshire Three Peaks – Karen’s challenge to remind us of Julie Read More »
The ME Association ME/CFS (& Long Covid) Weekly Research Round-up
The weekly research round-up now includes recent publications about ME/CFS and about Long Covid. We highlight several studies that have particularly caught our interest and follow these with the full …
The ME Association ME/CFS (& Long Covid) Weekly Research Round-up Read More »
Hilary enters our Haircut Hall of Fame
Hilary Best, one of our most regular supporters, is the latest person to enter the MEA Haircut Hall of Fame. Using her husband’s beard trimmer at setting 4, she hacked …
Video: Long Covid, PVFS, & ME/CFS with leading experts including Dr Charles Shepherd
This is an excellent new video, and we commend Broken Battery on his timely production. It features expert commentary from Dr Charles Shepherd (Hon. Medical Adviser to the ME Association), …
Video: Long Covid, PVFS, & ME/CFS with leading experts including Dr Charles Shepherd Read More »
Beads and ME
Jasmine Guy, who makes handmade jewellery at her home in Richmond, North Yorkshire, has found the most gorgeous space in which to sell her wares. Working with her father, website …
Research: Long Covid can affect children & young people as well as adults
There is now growing evidence that Long covid can affect children and young people as well as adults. And it seems likely that some of them will go on and meet …
Research: Long Covid can affect children & young people as well as adults Read More »
Financial Times Letters re: How to live with Long Covid – by Neil Riley
Sir, Rebecca Newman’s Article on ‘How to Live with Long Covid’ was a timely reminder that old fashioned convalescence still has a crucial part to play in recovery in any …
Financial Times Letters re: How to live with Long Covid – by Neil Riley Read More »