News

Virtual meeting – please email your own MP and ask that they attend this important meeting

The disease’s “long-haulers” have endured waves of symptoms, and disbelief from doctors and friends.

Five new studies published this week – including one on sleep problems in adolescents with ME/CFS

Rest, Nutrition and Sleep – should be new norm working with patients with PVFS, physios urged.

Up the Blues! This family came together during lockdown – despite living miles apart.

For people with ME/CFS going back to work. Discusses the Returning to Work Risk Assessments.

Two key figures in worldwide ME advocacy – Brian Vastag and Beth Mazur – review the research.

Hannah Collins – there’s good cheer in that right good cuppa!

There were two new research publications this week, and we’ve updated the MEA Research Index.

“Worse is the fear of getting this nasty coronavirus. I know if I get it I could be in serious trouble, especially with the Asthma, but even with M.E…”

“Everyone is talking to everyone else and, with so many good people on our side, things will change for us.”

Two more fundraising champions who are desperate for the ME Association to survive.

The project comprises a series of highly recommended films. The latest video is about Severe and Very Severe ME/CFS.

“There is abundant evidence that ME/CFS can follow apparently infectious illnesses of uncertain cause, or a clearly diagnosed infectious illness…”

“For about the next year or so I thought I must just be imagining an illness, that it was my fault, it wasn’t real…”

“I hope that one day I will be able to use my lost years to help others by raising awareness of the plight of those living with M.E.”

“It should have been the beginnings of my life instead it was the other way around. I was to lose all my 20’s and 30’s to this illness.”

“Without doubt my biggest regret has been that I have not been able to have my own family.”

The research bulletin highlights 2 of 4 new studies about ME/CFS published in the last week.

“My husband has taken on housework, shopping, cooking and the garden so is effectively my carer.”