News

This week, three new research studies about ME/CFS have been published and we highlight two of them.

Fancy some northern humour? Take a look at Rich Davenport’s comic genius. Proceeds from his latest book kindly donated to the ME Association.

We highlight 3 studies from last week’s 6 ME/CFS research publications.

The response from Stephen Powis at NHS England to the MEA’s concerns is very disappointing and dismissive…

“The NHS is urging people to exercise at a time when many, just like people with post-viral ME, need to rest, recuperate and pace themselves,” Countess of Mar.

With temperatures soaring in parts of the country, we consider ways that you can keep cool and help prevent an increase in symptom severities.

It is an authoritative publication representing the most comprehensive, evidence-based summary currently available.

Kara’s brilliant album, recorded from her sickbed, is performing exceptionally well in the charts. Download your copy today!

The serious concerns expressed by the MEA about the Covid recovery guideline resulted in a reply from NHS England and an article in The Times newspaper.

Written by O. Ashton – 3.1.2020 I’m Tired… In September 2018 I came down with glandular fever, I felt tired and had a sore throat, a fever and a cough.  I was 12 years old and attended full-time education in a mainstream school. My GP told me I would get better and I should sleep […]

Caring for someone with Very Severe M.E is both an honour, a privilege and a responsibility so difficult it is similar to walking through a field of landmines, not knowing if the next step you take no matter how important and necessary is going to have devastating consequences. My name is Clare and I was […]

This week we feature three new research studies including a critical review of genetic research ahead of the DecodeME study.

The 8th August is Understanding & Remembrance Day for Severe Myalgic Encephalomyelitis, also known as Severe ME Day. It is held on the birthdate of Sophia Mirza, who was the first person in the UK to have their cause of death registered as Very Severe ME. Unfortunately, she is not the only one who’s died […]

M.E. changed his mum from “being called Tigger because she was always so full of life” to someone who now has to count every ounce of energy used in case it runs out and leaves her floored for days.

“Having M.E. robs us of just about everything, but not the ability to be supportive or kind. We are a community, and it should be us against the world not us against each other.”

The ME Association were nominated for this challenge because of Emily who has been housebound with M.E. for 9 years.

It all started for me in 1992, when I was 29. I got pneumonia and pleurisy, was in bed for a month and there began my nightmare. I developed skin rashes and inflammation in my ribs, spreading all over. I was diagnosed with Lupus. A year later I was suffering attacks of muscle pain, fevers […]

The album is out on Saturday, but the single is out now! Help Kara raise funds for the Post-Mortem Tissue Bank to advance vital research into M.E.

We asked those who suffer with Severe M.E if they would like to submit their stories to be published on the ME Association website blog.

“It is incessant, inescapable torture. You are trapped. Completely powerless. You’re in agony with countless unbearable symptoms…”