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Personal Independence Payment (PIP) was born in April 2013. How long did it take to process your application and reach a decision?
- One month (1%, 1 Votes)
- Two months (0%, 0 Votes)
- Three months (0%, 0 Votes)
- Four months (2%, 3 Votes)
- Five months (2%, 2 Votes)
- Six months (3%, 4 Votes)
- Six to nine months (5%, 7 Votes)
- More than nine months (3%, 4 Votes)
- Not applied for PIP (84%, 111 Votes)
Total Voters: 132
Start Date: April 1, 2014 @ 1:27 pm
End Date: June 1, 2014 @ 8:09 am
NICE have stated that there is no reason to review their controversial guideline on ME/CFS. Do you agree?
- Yes (27%, 128 Votes)
- Not sure (2%, 9 Votes)
- No opinion (0%, 1 Votes)
- NO (71%, 337 Votes)
Total Voters: 475
Start Date: March 1, 2014 @ 12:33 am
End Date: June 1, 2014 @ 8:08 am
To what extent do you also have gastric and bowel symptoms since being diagnosed with ME/CFS?
- Constant (25%, 131 Votes)
- Most of the time (47%, 249 Votes)
- Occasionally (19%, 102 Votes)
- Not at all (9%, 43 Votes)
Total Voters: 525
Start Date: February 1, 2014 @ 12:04 am
End Date: June 1, 2014 @ 8:08 am
What is the most important issue for The MEA to campaign on in 2014? You can tick up to six answers.
- Benefits (17%, 212 Votes)
- Medical Education (18%, 235 Votes)
- NHS Services (15%, 195 Votes)
- Nice Guideline Review (12%, 159 Votes)
- Research (21%, 266 Votes)
- Treatment Trials (16%, 208 Votes)
- None of the above (0%, 4 Votes)
Total Voters: 372
Start Date: January 1, 2014 @ 12:03 am
End Date: June 1, 2014 @ 8:07 am
Overall, what has happened to your ME/CFS over the past year?
- Major improvement (3%, 10 Votes)
- Minor improvement (17%, 64 Votes)
- No change (25%, 95 Votes)
- Minor deterioration (27%, 105 Votes)
- Major deterioration (28%, 108 Votes)
Total Voters: 382
Start Date: December 1, 2013 @ 3:01 pm
End Date: June 1, 2014 @ 8:07 am
Have you written to or visited your MP, MSP, AM, or MLA in relation to ME/CFS? If so, how helpful was his/her intervention?
- Very helpful (6%, 11 Votes)
- Partly helpful (13%, 25 Votes)
- Not helpful (33%, 64 Votes)
- Made things worse (2%, 3 Votes)
- Never contacted an MP (46%, 89 Votes)
Total Voters: 192
Start Date: November 1, 2013 @ 8:39 am
End Date: December 1, 2013 @ 8:38 am
What is your MAIN reason for using the MEA website?
- Diagnosis (26%, 136 Votes)
- Donating / Fundraising (0%, 1 Votes)
- Finding a Local Group (5%, 26 Votes)
- Finding an NHS Service (3%, 15 Votes)
- The news blog (22%, 112 Votes)
- Research (23%, 121 Votes)
- Treatment (14%, 71 Votes)
- Website poll (1%, 7 Votes)
- Other (6%, 31 Votes)
Total Voters: 519
Start Date: October 1, 2013 @ 11:48 am
End Date: November 1, 2013 @ 8:01 am
How many of your blood relatives have (or did have) a diagnosis of ME/CFS? Overseas votes are welcome in this poll.
- None (69%, 727 Votes)
- 1 (19%, 199 Votes)
- 2 (8%, 89 Votes)
- 3 (2%, 20 Votes)
- 4 (1%, 8 Votes)
- 5 (0%, 1 Votes)
- 6 or more (1%, 7 Votes)
Total Voters: 1,051
Start Date: September 1, 2013 @ 1:02 am
End Date: October 1, 2013 @ 1:00 am
Should ME/CFS charities that support research be collaborating to help fund a Rituximab trial?
- Yes (82%, 425 Votes)
- No (5%, 28 Votes)
- Not sure (10%, 54 Votes)
- Neutral (3%, 9 Votes)
Total Voters: 516
Start Date: August 4, 2013 @ 8:51 am
End Date: September 1, 2013 @ 1:01 am
Are you going to apply for a Personal Independence Payment (PIP) from the DWP?
- Yes- definitely (24%, 100 Votes)
- Yes - probably (7%, 28 Votes)
- Not sure (12%, 50 Votes)
- No (23%, 97 Votes)
- Not yet - I claim DLA (34%, 150 Votes)
Total Voters: 425
Start Date: July 1, 2013 @ 4:33 pm
End Date: August 4, 2013 @ 8:31 am
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