MEA Surveys

Current Survey

    If you have ME/CFS and have made use of the MEA Covid vaccine priority template letters (for GPs and/or CCGs/Health Boards), what was the outcome?

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Archive of Surveys

Personal Independence Payment (PIP) was born in April 2013. How long did it take to process your application and reach a decision?

  • One month (1%, 1 Votes)
  • Two months (0%, 0 Votes)
  • Three months (0%, 0 Votes)
  • Four months (2%, 3 Votes)
  • Five months (2%, 2 Votes)
  • Six months (3%, 4 Votes)
  • Six to nine months (5%, 7 Votes)
  • More than nine months (3%, 4 Votes)
  • Not applied for PIP (84%, 111 Votes)
  • Total Voters: 132

Start Date: April 1, 2014 @ 1:27 pm
End Date: June 1, 2014 @ 8:09 am

NICE have stated that there is no reason to review their controversial guideline on ME/CFS. Do you agree?

  • Yes (27%, 128 Votes)
  • Not sure (2%, 9 Votes)
  • No opinion (0%, 1 Votes)
  • NO (71%, 337 Votes)
  • Total Voters: 475

Start Date: March 1, 2014 @ 12:33 am
End Date: June 1, 2014 @ 8:08 am

To what extent do you also have gastric and bowel symptoms since being diagnosed with ME/CFS?

  • Constant (25%, 131 Votes)
  • Most of the time (47%, 249 Votes)
  • Occasionally (19%, 102 Votes)
  • Not at all (9%, 43 Votes)
  • Total Voters: 525

Start Date: February 1, 2014 @ 12:04 am
End Date: June 1, 2014 @ 8:08 am

What is the most important issue for The MEA to campaign on in 2014? You can tick up to six answers.

  • Benefits (17%, 212 Votes)
  • Medical Education (18%, 235 Votes)
  • NHS Services (15%, 195 Votes)
  • Nice Guideline Review (12%, 159 Votes)
  • Research (21%, 266 Votes)
  • Treatment Trials (16%, 208 Votes)
  • None of the above (0%, 4 Votes)
  • Total Voters: 372

Start Date: January 1, 2014 @ 12:03 am
End Date: June 1, 2014 @ 8:07 am

Overall, what has happened to your ME/CFS over the past year?

  • Major improvement (3%, 10 Votes)
  • Minor improvement (17%, 64 Votes)
  • No change (25%, 95 Votes)
  • Minor deterioration (27%, 105 Votes)
  • Major deterioration (28%, 108 Votes)
  • Total Voters: 382

Start Date: December 1, 2013 @ 3:01 pm
End Date: June 1, 2014 @ 8:07 am

Have you written to or visited your MP, MSP, AM, or MLA in relation to ME/CFS? If so, how helpful was his/her intervention?

  • Very helpful (6%, 11 Votes)
  • Partly helpful (13%, 25 Votes)
  • Not helpful (33%, 64 Votes)
  • Made things worse (2%, 3 Votes)
  • Never contacted an MP (46%, 89 Votes)
  • Total Voters: 192

Start Date: November 1, 2013 @ 8:39 am
End Date: December 1, 2013 @ 8:38 am

What is your MAIN reason for using the MEA website?

  • Diagnosis (26%, 136 Votes)
  • Donating / Fundraising (0%, 1 Votes)
  • Finding a Local Group (5%, 26 Votes)
  • Finding an NHS Service (3%, 15 Votes)
  • The news blog (22%, 112 Votes)
  • Research (23%, 121 Votes)
  • Treatment (14%, 71 Votes)
  • Website poll (1%, 7 Votes)
  • Other (6%, 31 Votes)
  • Total Voters: 519

Start Date: October 1, 2013 @ 11:48 am
End Date: November 1, 2013 @ 8:01 am

How many of your blood relatives have (or did have) a diagnosis of ME/CFS? Overseas votes are welcome in this poll.

  • None (69%, 727 Votes)
  • 1 (19%, 199 Votes)
  • 2 (8%, 89 Votes)
  • 3 (2%, 20 Votes)
  • 4 (1%, 8 Votes)
  • 5 (0%, 1 Votes)
  • 6 or more (1%, 7 Votes)
  • Total Voters: 1,051

Start Date: September 1, 2013 @ 1:02 am
End Date: October 1, 2013 @ 1:00 am

Should ME/CFS charities that support research be collaborating to help fund a Rituximab trial?

  • Yes (82%, 425 Votes)
  • No (5%, 28 Votes)
  • Not sure (10%, 54 Votes)
  • Neutral (3%, 9 Votes)
  • Total Voters: 516

Start Date: August 4, 2013 @ 8:51 am
End Date: September 1, 2013 @ 1:01 am

Are you going to apply for a Personal Independence Payment (PIP) from the DWP?

  • Yes- definitely (24%, 100 Votes)
  • Yes - probably (7%, 28 Votes)
  • Not sure (12%, 50 Votes)
  • No (23%, 97 Votes)
  • Not yet - I claim DLA (34%, 150 Votes)
  • Total Voters: 425

Start Date: July 1, 2013 @ 4:33 pm
End Date: August 4, 2013 @ 8:31 am

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