SURVEYS

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MAY SURVEY

The May website survey is asking about blood pressure measurement and ME/CFS.

Blood pressure is the pressure of blood in your arteries – the vessels that carry blood from your heart to your brain and the rest of your body. You need a certain amount of pressure to keep the blood moving round all parts of your body. Your blood pressure naturally goes up and down throughout the day and night, and it’s normal for it to go up while you’re moving about.

Is your blood pressure usually normal, low (hypotension) or high (hypertension)? Or do you not know what your blood pressure measurement is?

Archive of Surveys

This poll is no longer accepting votes

What do you believe is primarily responsible for triggering your ME/CFS?
1881 votes · 3252 answers

Are you still driving a car following a diagnosis of ME/CFS?

  • Yes - no change (16%)
  • Yes - when I feel OK to do so (41%)
  • Yes - on rare occasions (10%)
  • No - but I'm keeping my licence (17%)
  • No - I've surrendered my licence (3%)
  • No - my licence was revoked by the DVLA (1%)
  • I've never driven or owned a car (11%)
  • No - for other reasons (cost etc) (1%)
  • Total Voters: 447

Start Date: August 2, 2015 @ 2:31 pm
End Date: March 10, 2016 @ 9:41 pm

Are you still driving a car following a diagnosis of ME/CFS?

  • Yes - no change (6%)
  • Yes - when I feel OK to do so (47%)
  • Yes - on rare occasions (18%)
  • No - but I'm keeping my license (22%)
  • No - I've surrendered my license (1%)
  • I've never driven or owned a car (5%)
  • No - my licence was revoked by the DVLA (1%)
  • Total Voters: 147

Start Date: August 1, 2015 @ 7:23 pm
End Date: March 10, 2016 @ 9:41 pm

If you have irritable bowel symptoms / syndrome in addition to ME/CFS, have you ever been tested to exclude coeliac disease?

  • YES - definitely (44%)
  • YES - possibly (5%)
  • I don't know (5%)
  • NO (36%)
  • I don't have any IBS symptoms (10%)
  • Total Voters: 402

Start Date: July 2, 2015 @ 10:45 am
End Date: August 1, 2015 @ 7:25 pm

Have you told us what you think of the MEA? Our survey and this poll are now CLOSED

  • YES - because I appreciate being asked (83%)
  • YES - but only because I'm a member (2%)
  • YES - but only because I'm a non-member (2%)
  • NO – I'm not well enough to complete a survey (8%)
  • NO - I dislike surveys on principle (0%)
  • NO - Oh please! I have better things to do with my time! (5%)
  • Total Voters: 53

Start Date: June 3, 2015 @ 8:06 am
End Date: No Expiry

Will you be contacting your new MP after the election to ask him/her to join the All Party Parliamentary Group on ME at Westminster?

  • Definitely (31%)
  • Probably (13%)
  • Not sure (18%)
  • Probably not (27%)
  • Definitely not (11%)
  • Total Voters: 143

Start Date: May 1, 2015 @ 10:10 am
End Date: No Expiry

How helpful has your union/professional body been when you have asked for help with an employment problem?

  • Very helpful (0%)
  • Quite helpful (0%)
  • Not interested (0%)
  • Neutral (0%)
  • Unhelpful (0%)
  • Very unhelpful (0%)
  • Never asked for help (100%)
  • Total Voters: 0

Start Date: April 1, 2015 @ 8:36 pm
End Date: May 1, 2015 @ 10:12 am

If you are still able to work, how helpful is your employer re: modifications to hours, duties, etc?

  • Very helpful (9%)
  • Quite helpful (5%)
  • Varies: helpful and unhelpful (7%)
  • Neutral (3%)
  • Unhelpful (2%)
  • Very unhelpful (7%)
  • Unable to work (58%)
  • I'm self-employed (9%)
  • Total Voters: 241

Start Date: April 1, 2015 @ 8:40 pm
End Date: May 1, 2015 @ 10:12 am

Should CFS and/or ME be renamed Systemic Exertion Intolerance Disease (SEID) as recommended in the U.S. Institute of Medicine Report?

  • Yes - but for CFS only (9%)
  • Yes - but for ME only (3%)
  • Yes - for CFS and ME (14%)
  • Not sure (9%)
  • No opinion (1%)
  • No - do not like SEID (64%)
  • Total Voters: 753

Start Date: March 1, 2015 @ 12:00 am
End Date: May 1, 2015 @ 10:13 am

If you need to nap during the daytime, how do you generally feel afterwards?

  • Better cognitively, Unchanged physically (15%)
  • Better physically, Unchanged cognitively (7%)
  • Better - both cognitively and physically (29%)
  • No change (13%)
  • Worse - both cognitively and physically (15%)
  • Worse cognitively, Better physically (5%)
  • Worse physically, Better cognitively (3%)
  • I don't nap in the daytime (13%)
  • Total Voters: 691

Start Date: February 3, 2015 @ 9:00 am
End Date: No Expiry

To what extent do you suffer from cold hands and/or feet during the winter months?

  • All of the time (31%)
  • Most of the time (50%)
  • Only in cold weather (6%)
  • Occasionally (10%)
  • Never (3%)
  • Total Voters: 818

Start Date: January 1, 2015 @ 8:15 am
End Date: No Expiry

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