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If you need to nap during the daytime, how do you generally feel afterwards?
- Better cognitively, Unchanged physically (15%, 105 Votes)
- Better physically, Unchanged cognitively (7%, 46 Votes)
- Better - both cognitively and physically (29%, 198 Votes)
- No change (13%, 90 Votes)
- Worse - both cognitively and physically (15%, 107 Votes)
- Worse cognitively, Better physically (5%, 32 Votes)
- Worse physically, Better cognitively (3%, 18 Votes)
- I don't nap in the daytime (13%, 95 Votes)
Total Voters: 691
Start Date: February 3, 2015 @ 9:00 am
End Date: No Expiry
To what extent do you suffer from cold hands and/or feet during the winter months?
- All of the time (31%, 253 Votes)
- Most of the time (50%, 413 Votes)
- Only in cold weather (6%, 48 Votes)
- Occasionally (10%, 79 Votes)
- Never (3%, 25 Votes)
Total Voters: 818
Start Date: January 1, 2015 @ 8:15 am
End Date: No Expiry
How would you prefer your illness to be described?
- M.E. (70%, 620 Votes)
- ME/CFS (13%, 115 Votes)
- CFS/ME (4%, 34 Votes)
- CFS (3%, 30 Votes)
- PVFS (1%, 12 Votes)
- CFIDS (1%, 11 Votes)
- Other (4%, 34 Votes)
- Not bothered (4%, 31 Votes)
Total Voters: 887
Start Date: December 1, 2014 @ 1:49 pm
End Date: No Expiry
To what degree does joint pain occur in your ME/CFS?
- severe (35%, 234 Votes)
- moderate (35%, 237 Votes)
- mild (10%, 67 Votes)
- occasional (11%, 75 Votes)
- never had joint pain (9%, 56 Votes)
Total Voters: 669
Start Date: November 2, 2014 @ 4:04 pm
End Date: December 1, 2014 @ 2:07 pm
Reports from the Research Collaborative conference in Bristol suggest exciting new directions for ME/CFS research (see http://wp.me/p3Txzy-5ud). What do you think?
- A breakthrough is on the way (5%, 8 Votes)
- A big step forward (7%, 10 Votes)
- There's potential for better, future research (15%, 22 Votes)
- Looks hopeful, but it's early days (27%, 41 Votes)
- Same old, same old... (20%, 30 Votes)
- Too much emphasis on chronic fatigue/CFS (17%, 25 Votes)
- No comment (9%, 14 Votes)
Total Voters: 150
Start Date: October 3, 2014 @ 7:54 am
End Date: December 1, 2014 @ 2:07 pm
What is the most effective treatment you have used for pain relief in ME/CFS?
- acupuncture (4%, 13 Votes)
- amitriptylene (10%, 32 Votes)
- aspirin (1%, 4 Votes)
- gabapentin/Neurontin (10%, 31 Votes)
- pregabalin/Lyrica (7%, 22 Votes)
- ibuprofen/Brufen (9%, 28 Votes)
- paracetamol (6%, 18 Votes)
- strong opiate (11%, 33 Votes)
- TENS machine (1%, 4 Votes)
- tramadol (12%, 38 Votes)
- other (29%, 88 Votes)
Total Voters: 310
Start Date: September 8, 2014 @ 10:27 am
End Date: December 1, 2014 @ 2:07 pm
Has your GP ever referred you to a specific NHS consultant or ME/CFS service of your choice - regardless of location?
- YES – successful (34%, 121 Votes)
- YES – not successful (13%, 44 Votes)
- NO – refused to do so (13%, 45 Votes)
- NO – I've never asked (39%, 136 Votes)
- NO – I do not have a GP (1%, 6 Votes)
Total Voters: 352
Start Date: July 31, 2014 @ 9:00 pm
End Date: December 1, 2014 @ 2:06 pm
If you have severe ME, how do you rate your current care and management by the NHS?
- Excellent (2%, 5 Votes)
- Good (4%, 13 Votes)
- Average (10%, 31 Votes)
- Poor (20%, 62 Votes)
- Dreadful (17%, 53 Votes)
- Non-existent (47%, 145 Votes)
Total Voters: 309
Start Date: July 4, 2014 @ 9:59 am
End Date: December 1, 2014 @ 2:00 pm
If you have applied for ESA (Employment and Support Allowance), what was the outcome?
- Awaiting a decision (9%, 27 Votes)
- Placed in Support Group (31%, 92 Votes)
- Placed in Work-Related Activity Group (16%, 48 Votes)
- Refused - successful on appeal (12%, 35 Votes)
- Refused - appeal in progress (2%, 6 Votes)
- Refused - did not appeal (6%, 19 Votes)
- Have not applied for ESA (20%, 61 Votes)
- Refused – not successful on appeal (4%, 13 Votes)
Total Voters: 301
Start Date: June 1, 2014 @ 8:03 am
End Date: July 4, 2014 @ 11:31 am
If the MEA wins some money in this month's Direct Debit voting contest, which of our biomed research priorities should it go to?
- Rituximab trial (18%, 50 Votes)
- Neuro-inflammation and post-mortem research (19%, 53 Votes)
- Immune system research (48%, 131 Votes)
- No preference (15%, 39 Votes)
Total Voters: 273
Start Date: May 1, 2014 @ 9:31 am
End Date: June 1, 2014 @ 8:09 am
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