MEA Surveys

Current Survey

    If you have ME/CFS and have made use of the MEA Covid vaccine priority template letters (for GPs and/or CCGs/Health Boards), what was the outcome?

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Archive of Surveys

How do you rate the UK newspaper coverage of the latest PACE trial analysis that was published in Lancet Psychiatry?

  • Excellent (1%, 3 Votes)
  • Good (0%, 2 Votes)
  • Fair (0%, 2 Votes)
  • Mixed – Good and Bad (4%, 19 Votes)
  • Poor (11%, 47 Votes)
  • Dreadful (82%, 357 Votes)
  • No opinion (2%, 5 Votes)
  • Total Voters: 435

Start Date: November 2, 2015 @ 4:53 pm
End Date: March 10, 2016 @ 9:42 pm

How long did it take between the onset of your symptoms and a firm diagnosis of ME/CFS being made by a doctor?

  • Less than 3 months (3%, 27 Votes)
  • 3 – 6 months (9%, 68 Votes)
  • 6 – 12 months (16%, 125 Votes)
  • 12 – 18 months (11%, 82 Votes)
  • 18 months - 2 years (10%, 79 Votes)
  • 2 – 4 years (18%, 138 Votes)
  • 5 years or more (26%, 199 Votes)
  • Never had a doctor diagnosis (5%, 35 Votes)
  • Awaiting a diagnosis (2%, 20 Votes)
  • Total Voters: 773

Start Date: August 31, 2015 @ 5:20 pm
End Date: March 10, 2016 @ 9:42 pm

Are you still driving a car following a diagnosis of ME/CFS?

  • Yes - no change (16%, 70 Votes)
  • Yes - when I feel OK to do so (41%, 183 Votes)
  • Yes - on rare occasions (10%, 44 Votes)
  • No - but I'm keeping my licence (17%, 76 Votes)
  • No - I've surrendered my licence (3%, 14 Votes)
  • No - my licence was revoked by the DVLA (1%, 3 Votes)
  • I've never driven or owned a car (11%, 49 Votes)
  • No - for other reasons (cost etc) (1%, 8 Votes)
  • Total Voters: 447

Start Date: August 2, 2015 @ 2:31 pm
End Date: March 10, 2016 @ 9:41 pm

Are you still driving a car following a diagnosis of ME/CFS?

  • Yes - no change (6%, 9 Votes)
  • Yes - when I feel OK to do so (47%, 69 Votes)
  • Yes - on rare occasions (18%, 27 Votes)
  • No - but I'm keeping my license (22%, 33 Votes)
  • No - I've surrendered my license (1%, 2 Votes)
  • I've never driven or owned a car (5%, 7 Votes)
  • No - my licence was revoked by the DVLA (1%, 0 Votes)
  • Total Voters: 147

Start Date: August 1, 2015 @ 7:23 pm
End Date: March 10, 2016 @ 9:41 pm

If you have irritable bowel symptoms / syndrome in addition to ME/CFS, have you ever been tested to exclude coeliac disease?

  • YES - definitely (44%, 176 Votes)
  • YES - possibly (5%, 22 Votes)
  • I don't know (5%, 20 Votes)
  • NO (36%, 143 Votes)
  • I don't have any IBS symptoms (10%, 41 Votes)
  • Total Voters: 402

Start Date: July 2, 2015 @ 10:45 am
End Date: August 1, 2015 @ 7:25 pm

Have you told us what you think of the MEA? Our survey and this poll are now CLOSED

  • YES - because I appreciate being asked (83%, 44 Votes)
  • YES - but only because I'm a member (2%, 1 Votes)
  • YES - but only because I'm a non-member (2%, 1 Votes)
  • NO – I'm not well enough to complete a survey (8%, 4 Votes)
  • NO - I dislike surveys on principle (0%, 0 Votes)
  • NO - Oh please! I have better things to do with my time! (5%, 3 Votes)
  • Total Voters: 53

Start Date: June 3, 2015 @ 8:06 am
End Date: No Expiry

Will you be contacting your new MP after the election to ask him/her to join the All Party Parliamentary Group on ME at Westminster?

  • Definitely (31%, 45 Votes)
  • Probably (13%, 19 Votes)
  • Not sure (18%, 26 Votes)
  • Probably not (27%, 38 Votes)
  • Definitely not (11%, 15 Votes)
  • Total Voters: 143

Start Date: May 1, 2015 @ 10:10 am
End Date: No Expiry

How helpful has your union/professional body been when you have asked for help with an employment problem?

  • Very helpful (0%, 0 Votes)
  • Quite helpful (0%, 0 Votes)
  • Not interested (0%, 0 Votes)
  • Neutral (0%, 0 Votes)
  • Unhelpful (0%, 0 Votes)
  • Very unhelpful (0%, 0 Votes)
  • Never asked for help (100%, 0 Votes)
  • Total Voters: 0

Start Date: April 1, 2015 @ 8:36 pm
End Date: May 1, 2015 @ 10:12 am

If you are still able to work, how helpful is your employer re: modifications to hours, duties, etc?

  • Very helpful (9%, 21 Votes)
  • Quite helpful (5%, 12 Votes)
  • Varies: helpful and unhelpful (7%, 16 Votes)
  • Neutral (3%, 7 Votes)
  • Unhelpful (2%, 6 Votes)
  • Very unhelpful (7%, 16 Votes)
  • Unable to work (58%, 139 Votes)
  • I'm self-employed (9%, 24 Votes)
  • Total Voters: 241

Start Date: April 1, 2015 @ 8:40 pm
End Date: May 1, 2015 @ 10:12 am

Should CFS and/or ME be renamed Systemic Exertion Intolerance Disease (SEID) as recommended in the U.S. Institute of Medicine Report?

  • Yes - but for CFS only (9%, 67 Votes)
  • Yes - but for ME only (3%, 26 Votes)
  • Yes - for CFS and ME (14%, 108 Votes)
  • Not sure (9%, 69 Votes)
  • No opinion (1%, 11 Votes)
  • No - do not like SEID (64%, 472 Votes)
  • Total Voters: 753

Start Date: March 1, 2015 @ 12:00 am
End Date: May 1, 2015 @ 10:13 am

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