SURVEYS
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MAY SURVEY
The May website survey is asking about blood pressure measurement and ME/CFS.
Blood pressure is the pressure of blood in your arteries – the vessels that carry blood from your heart to your brain and the rest of your body. You need a certain amount of pressure to keep the blood moving round all parts of your body. Your blood pressure naturally goes up and down throughout the day and night, and it’s normal for it to go up while you’re moving about.
Archive of Surveys
This poll is no longer accepting votes
How much do you currently spend on vitamins, minerals and health supplements per month?
- Nothing (25%)
- Up to £5 (15%)
- £6 to £10 (12%)
- £11 – £25 (16%)
- £26 – £50 (14%)
- £51 – £100 (10%)
- £101 – £250 (4%)
- Over £250 (2%)
- Don't know (2%)
Total Voters: 378
Start Date: May 3, 2017 @ 1:22 am
End Date: No Expiry
What was the result of your most recent blood test, or before treatment was given, to assess thyroid gland function?
- low - hypothyroidism (19%)
- borderline low (14%)
- normal (44%)
- borderline raised (2%)
- raised - hyperthyroidism (2%)
- don't know (10%)
- never done (9%)
- awaiting results (0%)
Total Voters: 343
Start Date: April 1, 2017 @ 8:00 am
End Date: No Expiry
How often do you have sensory symptoms in the skin such as 'pins and needles', loss of sensation, or pain on touching the skin?
- Constantly (20%)
- Frequently (41%)
- Quite often (19%)
- Occasionally (15%)
- Never (5%)
Total Voters: 557
Start Date: March 1, 2017 @ 5:00 pm
End Date: No Expiry
Where is your normal place of residence?
- England (76%)
- Scotland (10%)
- Wales (3%)
- Northern Ireland (2%)
- Europe outside the UK (3%)
- North America or Canada (3%)
- Asia or Africa (0%)
- Australia or New Zealand (2%)
- Other (1%)
Total Voters: 629
Start Date: February 2, 2017 @ 1:18 pm
End Date: No Expiry
If you have been to an NHS ME/CFS clinic in the past year, how do you rate the advice/information that was given on management?
- Excellent (5%)
- Good (11%)
- Adequate (6%)
- Mix of good and bad (13%)
- Poor (17%)
- Dreadful (23%)
- No advice given/required (3%)
- Waiting for an appointment (3%)
- Unable to get a referral (19%)
Total Voters: 184
Start Date: January 3, 2017 @ 4:04 pm
End Date: February 2, 2017 @ 1:20 pm
Overall, how is your state of health and disability compared to this time last year?
- Recovered (0%)
- Almost recovered (1%)
- Much better (2%)
- A bit better (13%)
- Much the same (29%)
- A bit worse (29%)
- Much worse (26%)
Total Voters: 409
Start Date: December 1, 2016 @ 11:26 am
End Date: No Expiry
Following the re-analysis of the PACE trial data, should NICE remove its recommendations on CBT and GET?
- Yes - definitely (92%)
- Yes - to some extent (6%)
- Neutral (1%)
- Not sure (0%)
- Probably not (0%)
- Definitely not (1%)
Total Voters: 765
Start Date: November 1, 2016 @ 1:05 am
End Date: No Expiry
Do you have a diagnosis of PoTS (postural orthostatic tachycardia syndrome) in addition to ME/CFS?
- YES - definitely (21%)
- YES - probably (9%)
- Being assessed at the moment (3%)
- NOT SURE - never been assessed (46%)
- NO (21%)
Total Voters: 320
Start Date: October 3, 2016 @ 3:20 pm
End Date: No Expiry
Have you applied for a Personal Independence Payment (PIP) from the DWP? If so, what was the initial decision on your claim?
- Refused at initial application (24%)
- Refused on appeal (5%)
- Awarded care and mobility at either rate (26%)
- Care only at enhanced rate (0%)
- Care only at standard rate (7%)
- Mobility only at enhanced rate (1%)
- Mobility only at standard rate (5%)
- Application in progress (8%)
- I'm not applying for PIP (24%)
Total Voters: 222
Start Date: September 1, 2016 @ 12:57 pm
End Date: October 3, 2016 @ 3:25 pm
Should ME/CFS charities that support research be collaborating to help fund a Rituximab trial?
- Yes (67%)
- No (7%)
- Not sure (23%)
- Neutral (3%)
Total Voters: 224
Start Date: August 4, 2016 @ 5:45 pm
End Date: October 3, 2016 @ 3:22 pm