SURVEYS
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See an archive of previous surveys

JUNE SURVEY
Archive of Surveys
How much do you currently spend on vitamins, minerals and health supplements per month?
- Nothing (25%)
- Up to £5 (15%)
- £6 to £10 (12%)
- £11 – £25 (16%)
- £26 – £50 (14%)
- £51 – £100 (10%)
- £101 – £250 (4%)
- Over £250 (2%)
- Don't know (2%)
Total Voters: 378
Start Date: May 3, 2017 @ 1:22 am
End Date: No Expiry
What was the result of your most recent blood test, or before treatment was given, to assess thyroid gland function?
- low - hypothyroidism (19%)
- borderline low (14%)
- normal (44%)
- borderline raised (2%)
- raised - hyperthyroidism (2%)
- don't know (10%)
- never done (9%)
- awaiting results (0%)
Total Voters: 343
Start Date: April 1, 2017 @ 8:00 am
End Date: No Expiry
How often do you have sensory symptoms in the skin such as 'pins and needles', loss of sensation, or pain on touching the skin?
- Constantly (20%)
- Frequently (41%)
- Quite often (19%)
- Occasionally (15%)
- Never (5%)
Total Voters: 557
Start Date: March 1, 2017 @ 5:00 pm
End Date: No Expiry
Where is your normal place of residence?
- England (76%)
- Scotland (10%)
- Wales (3%)
- Northern Ireland (2%)
- Europe outside the UK (3%)
- North America or Canada (3%)
- Asia or Africa (0%)
- Australia or New Zealand (2%)
- Other (1%)
Total Voters: 629
Start Date: February 2, 2017 @ 1:18 pm
End Date: No Expiry
If you have been to an NHS ME/CFS clinic in the past year, how do you rate the advice/information that was given on management?
- Excellent (5%)
- Good (11%)
- Adequate (6%)
- Mix of good and bad (13%)
- Poor (17%)
- Dreadful (23%)
- No advice given/required (3%)
- Waiting for an appointment (3%)
- Unable to get a referral (19%)
Total Voters: 184
Start Date: January 3, 2017 @ 4:04 pm
End Date: February 2, 2017 @ 1:20 pm
Overall, how is your state of health and disability compared to this time last year?
- Recovered (0%)
- Almost recovered (1%)
- Much better (2%)
- A bit better (13%)
- Much the same (29%)
- A bit worse (29%)
- Much worse (26%)
Total Voters: 409
Start Date: December 1, 2016 @ 11:26 am
End Date: No Expiry
Following the re-analysis of the PACE trial data, should NICE remove its recommendations on CBT and GET?
- Yes - definitely (92%)
- Yes - to some extent (6%)
- Neutral (1%)
- Not sure (0%)
- Probably not (0%)
- Definitely not (1%)
Total Voters: 765
Start Date: November 1, 2016 @ 1:05 am
End Date: No Expiry
Do you have a diagnosis of PoTS (postural orthostatic tachycardia syndrome) in addition to ME/CFS?
- YES - definitely (21%)
- YES - probably (9%)
- Being assessed at the moment (3%)
- NOT SURE - never been assessed (46%)
- NO (21%)
Total Voters: 320
Start Date: October 3, 2016 @ 3:20 pm
End Date: No Expiry
Have you applied for a Personal Independence Payment (PIP) from the DWP? If so, what was the initial decision on your claim?
- Refused at initial application (24%)
- Refused on appeal (5%)
- Awarded care and mobility at either rate (26%)
- Care only at enhanced rate (0%)
- Care only at standard rate (7%)
- Mobility only at enhanced rate (1%)
- Mobility only at standard rate (5%)
- Application in progress (8%)
- I'm not applying for PIP (24%)
Total Voters: 222
Start Date: September 1, 2016 @ 12:57 pm
End Date: October 3, 2016 @ 3:25 pm
Should ME/CFS charities that support research be collaborating to help fund a Rituximab trial?
- Yes (67%)
- No (7%)
- Not sure (23%)
- Neutral (3%)
Total Voters: 224
Start Date: August 4, 2016 @ 5:45 pm
End Date: October 3, 2016 @ 3:22 pm