MEA Surveys

Current Survey

    If you have ME/CFS and have made use of the MEA Covid vaccine priority template letters (for GPs and/or CCGs/Health Boards), what was the outcome?

  • View Results

Loading ... Loading ...

Archive of Surveys

Overall, how do you rate the June 27th BBC 'file on 4' radio programme that covered children with ME?

  • Excellent (9%, 11 Votes)
  • Very Good (19%, 24 Votes)
  • Good (28%, 36 Votes)
  • Average (10%, 13 Votes)
  • Poor (6%, 8 Votes)
  • Very Poor (2%, 3 Votes)
  • No Opinion (0%, 0 Votes)
  • I did not listen to it (26%, 33 Votes)
  • Total Voters: 128

Start Date: July 1, 2017 @ 2:05 pm
End Date: August 1, 2017 @ 2:05 pm

Should doctors be allowed to prescribe speculative or experimental forms of treatment - e.g. antiviral drugs - for people with ME/CFS?

  • Yes - definitely (43%, 215 Votes)
  • Yes - in some circumstances (40%, 202 Votes)
  • Not sure (8%, 38 Votes)
  • No opinion (1%, 3 Votes)
  • Probably not (4%, 19 Votes)
  • Definitely not (4%, 22 Votes)
  • Total Voters: 499

Start Date: June 1, 2017 @ 10:00 am
End Date: No Expiry

How much do you currently spend on vitamins, minerals and health supplements per month?

  • Nothing (25%, 96 Votes)
  • Up to £5 (15%, 57 Votes)
  • £6 to £10 (12%, 45 Votes)
  • £11 – £25 (16%, 59 Votes)
  • £26 – £50 (14%, 52 Votes)
  • £51 – £100 (10%, 38 Votes)
  • £101 – £250 (4%, 17 Votes)
  • Over £250 (2%, 8 Votes)
  • Don't know (2%, 6 Votes)
  • Total Voters: 378

Start Date: May 3, 2017 @ 1:22 am
End Date: No Expiry

What was the result of your most recent blood test, or before treatment was given, to assess thyroid gland function?

  • low - hypothyroidism (19%, 66 Votes)
  • borderline low (14%, 48 Votes)
  • normal (44%, 150 Votes)
  • borderline raised (2%, 8 Votes)
  • raised - hyperthyroidism (2%, 6 Votes)
  • don't know (10%, 33 Votes)
  • never done (9%, 31 Votes)
  • awaiting results (0%, 1 Votes)
  • Total Voters: 343

Start Date: April 1, 2017 @ 8:00 am
End Date: No Expiry

How often do you have sensory symptoms in the skin such as 'pins and needles', loss of sensation, or pain on touching the skin?

  • Constantly (20%, 109 Votes)
  • Frequently (41%, 229 Votes)
  • Quite often (19%, 104 Votes)
  • Occasionally (15%, 85 Votes)
  • Never (5%, 30 Votes)
  • Total Voters: 557

Start Date: March 1, 2017 @ 5:00 pm
End Date: No Expiry

Where is your normal place of residence?

  • England (76%, 476 Votes)
  • Scotland (10%, 63 Votes)
  • Wales (3%, 22 Votes)
  • Northern Ireland (2%, 13 Votes)
  • Europe outside the UK (3%, 18 Votes)
  • North America or Canada (3%, 19 Votes)
  • Asia or Africa (0%, 2 Votes)
  • Australia or New Zealand (2%, 10 Votes)
  • Other (1%, 6 Votes)
  • Total Voters: 629

Start Date: February 2, 2017 @ 1:18 pm
End Date: No Expiry

If you have been to an NHS ME/CFS clinic in the past year, how do you rate the advice/information that was given on management?

  • Excellent (5%, 9 Votes)
  • Good (11%, 21 Votes)
  • Adequate (6%, 11 Votes)
  • Mix of good and bad (13%, 24 Votes)
  • Poor (17%, 31 Votes)
  • Dreadful (23%, 42 Votes)
  • No advice given/required (3%, 5 Votes)
  • Waiting for an appointment (3%, 6 Votes)
  • Unable to get a referral (19%, 35 Votes)
  • Total Voters: 184

Start Date: January 3, 2017 @ 4:04 pm
End Date: February 2, 2017 @ 1:20 pm

Overall, how is your state of health and disability compared to this time last year?

  • Recovered (0%, 2 Votes)
  • Almost recovered (1%, 3 Votes)
  • Much better (2%, 9 Votes)
  • A bit better (13%, 53 Votes)
  • Much the same (29%, 117 Votes)
  • A bit worse (29%, 120 Votes)
  • Much worse (26%, 105 Votes)
  • Total Voters: 409

Start Date: December 1, 2016 @ 11:26 am
End Date: No Expiry

Following the re-analysis of the PACE trial data, should NICE remove its recommendations on CBT and GET?

  • Yes - definitely (92%, 704 Votes)
  • Yes - to some extent (6%, 49 Votes)
  • Neutral (1%, 4 Votes)
  • Not sure (0%, 0 Votes)
  • Probably not (0%, 3 Votes)
  • Definitely not (1%, 5 Votes)
  • Total Voters: 765

Start Date: November 1, 2016 @ 1:05 am
End Date: No Expiry

Do you have a diagnosis of PoTS (postural orthostatic tachycardia syndrome) in addition to ME/CFS?

  • YES - definitely (21%, 66 Votes)
  • YES - probably (9%, 29 Votes)
  • Being assessed at the moment (3%, 9 Votes)
  • NOT SURE - never been assessed (46%, 148 Votes)
  • NO (21%, 68 Votes)
  • Total Voters: 320

Start Date: October 3, 2016 @ 3:20 pm
End Date: No Expiry

ME CONNECT HELPLINE

0344 576 5326

Available every day of the week between these times: 10am - 12noon, 2pm - 4pm and 7pm - 9pm.

Calls cost the same as other standard landline numbers (starting 01 or 02). If you have a call package for your landline or mobile phone then calls will normally come out of your inclusive minutes.