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MAY SURVEY

The May website survey is asking about blood pressure measurement and ME/CFS.

Blood pressure is the pressure of blood in your arteries – the vessels that carry blood from your heart to your brain and the rest of your body. You need a certain amount of pressure to keep the blood moving round all parts of your body. Your blood pressure naturally goes up and down throughout the day and night, and it’s normal for it to go up while you’re moving about.

Is your blood pressure usually normal, low (hypotension) or high (hypertension)? Or do you not know what your blood pressure measurement is?

Archive of Surveys

This poll is no longer accepting votes

What do you believe is primarily responsible for triggering your ME/CFS?
1881 votes · 3252 answers

What are the most important issues about M.E. that you want your MP to raise/lobby about after the general election?

  • Increased government funding for biomedical research (13%)
  • Inappropriate use of CBT and/or GET by the NHS (10%)
  • Fair and accurate medical assessments for DWP benefits (11%)
  • Children and adolescents - NHS services, education, inappropriate child care referrals (4%)
  • Severe ME - prioritising NHS home visits, including improving social and respite care (7%)
  • Provision of home visits from GPs for those that request them (6%)
  • Problems with local NHS specialist and/or referral services (7%)
  • Increased availability of all aspects of specialist/hospital based care (5%)
  • Provision of accurate and continuing medical education for all health professionals (12%)
  • Ending the stigma still surrounding the condition (10%)
  • All of the above (13%)
  • None of the above - please share your comments (0%)
  • Other - please share your comments (1%)
  • Total Voters: 307

Start Date: November 5, 2019 @ 7:51 am
End Date: No Expiry

Do you own a pet? You can choose as many options as you like.

  • Yes - Dog/s (26%)
  • Yes - Cat/s (24%)
  • Yes - Dog/s and Cat/s (6%)
  • Yes - Fish (5%)
  • Yes - Rabbit/s (2%)
  • Yes - Reptile/s (2%)
  • Yes - Horse/s (1%)
  • Yes - Rodent/s (1%)
  • Yes - Another type of pet (2%)
  • No - Can't own a pet due to ME/CFS severity (14%)
  • No - Can't own a pet due to allergies (4%)
  • No - Can't own a pet due mainly to cost (3%)
  • No - Can't own a pet due to a lack of space/facilities (5%)
  • No - Don't really like pets (2%)
  • Total Voters: 454

Start Date: October 4, 2019 @ 10:20 am
End Date: No Expiry

If you were/are a pupil/student with M.E. what level of support did you receive from your school, college or university to help you manage your condition and remain in education?

  • Excellent Support (4%)
  • Good Support (4%)
  • Adequate Support (1%)
  • Patchy Support – It was sometimes helpful, sometimes not (18%)
  • Unhelpful Support (8%)
  • Detrimental Support (11%)
  • No Support – I was unable to continue my studies and had to drop out (54%)
  • Total Voters: 91

Start Date: September 4, 2019 @ 11:07 am
End Date: No Expiry

What category of illness severity best reflects your (or the person you care for's) current level of disability? Please refer to the current blog that provides the definitions.

  • Mild (9%)
  • Moderate (42%)
  • Severe (39%)
  • Very Severe (10%)
  • Total Voters: 638

Start Date: August 5, 2019 @ 10:05 am
End Date: No Expiry

As a person with M.E. what has been your experience of physiotherapy?

  • Positive and helped make my M.E. much better (1%)
  • Positive and helped my M.E. (5%)
  • Positive but did not help my M.E. (13%)
  • Neither positive, nor negative (5%)
  • Negative but helped my M.E. (0%)
  • Negative and made my M.E. worse (16%)
  • Negative and made my M.E. much worse (12%)
  • I have not received physiotherapy for M.E. (48%)
  • Total Voters: 441

Start Date: July 1, 2019 @ 5:55 pm
End Date: No Expiry

To what extent has loneliness and social isolation become a consequence of having ME?

  • Constantly (42%)
  • Most of the time (39%)
  • Some of the time (17%)
  • Occasionally (1%)
  • Not at all (1%)
  • Total Voters: 416

Start Date: June 6, 2019 @ 10:15 am
End Date: No Expiry

What does ME Awareness Week mean to you?

  • Raising public awareness in general (13%)
  • Providing education/research material to health professionals (6%)
  • Informing politicians about the issues (6%)
  • Attracting new researchers to the field (6%)
  • Improving access to appropriate medical care (6%)
  • Reaching out to those who are undiagnosed (4%)
  • Highlighting the known facts about M.E. (8%)
  • Highlighting those severely affected by M.E. (7%)
  • Highlighting children and young people affected by M.E. (5%)
  • Campaigning for funding for biomedical research (8%)
  • Raising funds for M.E. charities (5%)
  • Dispelling the myths about M.E. (11%)
  • Connecting with people outside of the community (4%)
  • Having some fun and making friends (2%)
  • All of the above (8%)
  • None of the above (0%)
  • Other (please leave comment – see blog for details) (0%)
  • Total Voters: 260

Start Date: May 1, 2019 @ 9:53 am
End Date: No Expiry

In addition to ME/CFS, do you have a diagnosis of any of the following conditions?

  • Endometriosis (5%)
  • Fibromyalgia (16%)
  • Hypermobility/Ehlers Danlos syndrome (7%)
  • Interstitial Cystitis (3%)
  • Irritable Bowel Syndrome (21%)
  • Jaw pain - Temperomandibular Jaw Dysfunction (9%)
  • Migraine (16%)
  • Multiple Chemical Sensitivities (7%)
  • Postural orthostatic Tachycardia Syndrome (PoTS) (12%)
  • None of the above (4%)
  • Total Voters: 1,024

Start Date: April 3, 2019 @ 8:17 am
End Date: No Expiry

Overall, how would you describe the effect that cognitive dysfunction (“brain fog”) has on your ability to function on a day-to-day basis?

  • Constant and severely disabling (16%)
  • Constant and moderately disabling (17%)
  • Constant and mildly disabling (6%)
  • Varies between moderate and severe (23%)
  • Varies between mild and moderate (23%)
  • Varies between mild and severe (15%)
  • No longer suffer with cognitive dysfunction (1%)
  • Never had cognitive dysfunction (0%)
  • Total Voters: 799

Start Date: March 5, 2019 @ 7:44 am
End Date: No Expiry

If you have used private or NHS counselling to help with emotional, mental health or relationship problems linked to ME/CFS did you find it helpful?

  • Yes - very helpful overall (9%)
  • Yes - very helpful for some aspects (7%)
  • Yes - quite helpful overall (4%)
  • Yes - quite helpful for some aspects (18%)
  • Neutral - neither helpful nor unhelpful (7%)
  • No - but not harmful (9%)
  • No - the approach taken made matters worse (13%)
  • Never tried counselling (33%)
  • Total Voters: 278

Start Date: February 1, 2019 @ 5:50 pm
End Date: No Expiry

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