MEA Surveys

Current Survey

    If you have ME/CFS and have made use of the MEA Covid vaccine priority template letters (for GPs and/or CCGs/Health Boards), what was the outcome?

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Archive of Surveys

What was the MAIN trigger factor in the onset of your ME/CFS?

  • Infection (43%, 813 Votes)
  • Stress (18%, 335 Votes)
  • No obvious trigger (14%, 266 Votes)
  • Trauma or accident (5%, 99 Votes)
  • Immunisation (5%, 95 Votes)
  • Infection from overseas travel (4%, 67 Votes)
  • Surgery (3%, 64 Votes)
  • None of the above (3%, 50 Votes)
  • Pregnancy (2%, 41 Votes)
  • Drug reaction (1%, 24 Votes)
  • Pesticide (1%, 18 Votes)
  • Allergic reaction (1%, 13 Votes)
  • Total Voters: 1,885

Start Date: April 1, 2009 @ 2:25 pm
End Date: November 2, 2009 @ 2:25 pm

Does your current GP have the skills and knowledge to care for ME/CFS patients?

  • NO sympathetic but needs more education (41%, 443 Votes)
  • NO not interested in ME/CFS (23%, 252 Votes)
  • YES to some extent (16%, 176 Votes)
  • NO knows nothing about ME/CFS (14%, 151 Votes)
  • Yes very much so (6%, 69 Votes)
  • Total Voters: 1,091

Start Date: March 1, 2009 @ 2:22 pm
End Date: November 2, 2009 @ 2:22 pm

Overall, how do you rate the current NHS management of your ME/CFS?

  • Very poor (51%, 564 Votes)
  • Poor (20%, 226 Votes)
  • I no longer use the NHS (16%, 172 Votes)
  • Average (7%, 75 Votes)
  • Good (4%, 41 Votes)
  • Excellent (2%, 28 Votes)
  • Total Voters: 1,106

Start Date: January 31, 2009 @ 2:18 pm
End Date: November 2, 2009 @ 2:18 pm

Would you be willing to donate your body after death to medical research into ME/CFS?

  • Yes (73%, 334 Votes)
  • Not sure (14%, 64 Votes)
  • No (13%, 62 Votes)
  • Total Voters: 460

Start Date: January 5, 2009 @ 2:12 pm
End Date: November 2, 2009 @ 2:12 pm

The MEA thinks the NICE guideline on ME/CFS is unfit for purpose and needs to be re-written

  • I agree (91%, 774 Votes)
  • I disagree (6%, 54 Votes)
  • I've got no opinion either way (3%, 21 Votes)
  • Total Voters: 849

Start Date: December 1, 2008 @ 2:09 pm
End Date: November 2, 2009 @ 2:09 pm

How did your flu jab affect your ME/CFS symptoms?

  • I felt the same (45%, 86 Votes)
  • I felt much worse (27%, 52 Votes)
  • I felt slightly worse (22%, 42 Votes)
  • I felt slightly better (4%, 7 Votes)
  • I felt much better (2%, 4 Votes)
  • Total Voters: 191

Start Date: November 13, 2008 @ 2:06 pm
End Date: September 10, 2009 @ 2:06 pm

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