SURVEYS

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See an archive of previous surveys

JUNE SURVEY

Since the start of the Covid pandemic in March 2020 have you been able to access NHS services about ME/CFS: 
to receive an early and accurate diagnosis
to see a GP in person as often as you needed to
to see a GP remotely e.g., by video/phone, as often as you needed to
to obtain a home visit as often as you needed to
to get a referral to an ME/CFS specialist service?
to see ME/CFS specialists in person
to see ME/CFS specialists remotely e.g., by video/phone.
to obtain a home visit from ME/CFS specialists
Based on your own experience since March 2020, how do you rate the NHS and its ability to provide adequate accessible support for your needs?

Archive of Surveys

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Is your blood pressure usually normal, low (hypotension) or high (hypertension)? Or do you not know what your blood pressure measurement is?

This poll is no longer accepting votes

What do you believe is primarily responsible for triggering your ME/CFS?
1881 votes · 3252 answers

Some researchers are linking ME to problems in childhood. So did you, on balance, have a happy childhood?

  • Yes, very happy (27%)
  • Yes, happy (23%)
  • Neutral (4%)
  • Mixture of happy and unhappy (26%)
  • No, unhappy (12%)
  • No, very unhappy (8%)
  • Total Voters: 1,254

Start Date: April 1, 2013 @ 12:18 am
End Date: June 2, 2013 @ 5:47 pm

Overall, how do you rate the content, layout, ease of use etc of the MEA website:

  • Excellent (37%)
  • Good (41%)
  • Fair (14%)
  • Poor (4%)
  • Very poor (4%)
  • Total Voters: 314

Start Date: March 1, 2013 @ 7:40 am
End Date: June 2, 2013 @ 5:47 pm

Does your current GP have the skills and knowledge to care for ME/CFS patients?

  • NO - sympathetic but needs more education (43%)
  • NO - not interested in ME/CFS (21%)
  • YES - to some extent (17%)
  • NO - knows nothing about ME/CFS (11%)
  • YES - very much so (8%)
  • Total Voters: 958

Start Date: February 1, 2013 @ 12:38 am
End Date: March 28, 2013 @ 5:22 pm

Overall, what has happened to your health in relation to ME/CFS during the course of 2012?

  • Major improvement (4%)
  • Minor improvement (14%)
  • No change (19%)
  • Minor deterioration (31%)
  • Major deterioration (32%)
  • Total Voters: 1,033

Start Date: January 1, 2013 @ 12:08 am
End Date: March 28, 2013 @ 5:22 pm

Who uses our website? Up to 2 votes per person are allowed

  • I have ME/CFS (UK) (65%)
  • I have ME/CFS (Overseas) (4%)
  • I may have ME/CFS (9%)
  • Carer (3%)
  • Partner (4%)
  • Parent (6%)
  • Health Professional (3%)
  • Journalist/Broadcaster (0%)
  • Other (6%)
  • Total Voters: 970

Start Date: December 1, 2012 @ 1:10 am
End Date: March 28, 2013 @ 5:21 pm

Have you consulted your MP (whole of the UK) about an ME/CFS or benefit related issue? If so, what was the response?

  • Very helpful (10%)
  • Fairly helpful (9%)
  • Neutral (9%)
  • Unhelpful (18%)
  • Refused to help (6%)
  • Awaiting a response (4%)
  • No - never contacted my MP (44%)
  • Total Voters: 457

Start Date: November 1, 2012 @ 12:00 am
End Date: December 31, 2012 @ 6:26 pm

If you have applied for ESA (Employment and Support Allowance), what was the outcome?

  • Awaiting a decision (10%)
  • Placed in Support Group (14%)
  • Placed in Work Related Activity Group (24%)
  • Refused - successful on appeal (7%)
  • Refused - unsuccessful on appeal (7%)
  • Refused - appeal in progress (11%)
  • Refused - did not appeal (7%)
  • Have not applied for ESA (20%)
  • Total Voters: 568

Start Date: October 2, 2012 @ 7:42 pm
End Date: November 1, 2012 @ 9:15 am

How many hours of solid uninterrupted sleep (regardless of medication) do you normally have each night?

  • Less than one (1%)
  • 1-2 (8%)
  • 2-3 (18%)
  • 3-4 (22%)
  • 4-5 (14%)
  • 5-6 (10%)
  • 6-7 (7%)
  • 7-8 (6%)
  • 8-10 (7%)
  • More than 10 (7%)
  • Total Voters: 1,890

Start Date: September 1, 2012 @ 6:02 am
End Date: November 1, 2012 @ 9:16 am

When you were diagnosed with ME/CFS, did the person who diagnosed you, OTHER THAN YOUR GP, give you notes to help you understand about ME and the best ways to cope with your symptoms?

  • YES – they were helpful (11%)
  • YES – but they were not very helpful (5%)
  • YES – but they were not at all helpful (2%)
  • YES – but they were misleading (2%)
  • NO – I got my notes from my GP (4%)
  • NO – I did not receive any notes from the person who diagnosed me (73%)
  • CAN'T REMEMBER (3%)
  • Total Voters: 764

Start Date: August 1, 2012 @ 2:12 am
End Date: November 1, 2012 @ 9:19 am

When you were diagnosed with ME/CFS, did your GP give you notes to help you understand about ME and the best ways to cope with your symptoms?

  • YES - they were helpful (5%)
  • YES - but they were not very helpful. (3%)
  • YES - but they were not at all helpful. (1%)
  • YES - but they were misleading. (1%)
  • NO - I did not receive any GP notes. (88%)
  • CAN'T REMEMBER (2%)
  • Total Voters: 903

Start Date: July 1, 2012 @ 2:06 am
End Date: November 1, 2012 @ 9:19 am

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