MEA Surveys

Current Survey

    If you have ME/CFS and have made use of the MEA Covid vaccine priority template letters (for GPs and/or CCGs/Health Boards), what was the outcome?

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Archive of Surveys

How supportive is your GP in providing medical evidence for DWP benefit claims?

  • Very helpful (23%, 95 Votes)
  • Fairly helpful (13%, 54 Votes)
  • Variable (10%, 41 Votes)
  • Never asked for help (17%, 70 Votes)
  • Not helpful (15%, 64 Votes)
  • Refuses to do so (5%, 22 Votes)
  • Do not claim benefits (17%, 75 Votes)
  • Total Voters: 420

Start Date: June 1, 2013 @ 12:14 am
End Date: July 1, 2013 @ 4:35 pm

Should ME/CFS charities that fund/support research be joining the UK Research Collaborative?

  • Yes – definitely (39%, 241 Votes)
  • Yes – with caution (31%, 190 Votes)
  • Not sure (9%, 54 Votes)
  • No opinion (1%, 7 Votes)
  • Probably not (5%, 29 Votes)
  • Definitely not (15%, 101 Votes)
  • Total Voters: 622

Start Date: May 1, 2013 @ 10:26 am
End Date: June 2, 2013 @ 5:46 pm

Some researchers are linking ME to problems in childhood. So did you, on balance, have a happy childhood?

  • Yes, very happy (27%, 336 Votes)
  • Yes, happy (23%, 283 Votes)
  • Neutral (4%, 46 Votes)
  • Mixture of happy and unhappy (26%, 326 Votes)
  • No, unhappy (12%, 152 Votes)
  • No, very unhappy (8%, 109 Votes)
  • Total Voters: 1,254

Start Date: April 1, 2013 @ 12:18 am
End Date: June 2, 2013 @ 5:47 pm

Overall, how do you rate the content, layout, ease of use etc of the MEA website:

  • Excellent (37%, 117 Votes)
  • Good (41%, 129 Votes)
  • Fair (14%, 43 Votes)
  • Poor (4%, 11 Votes)
  • Very poor (4%, 14 Votes)
  • Total Voters: 314

Start Date: March 1, 2013 @ 7:40 am
End Date: June 2, 2013 @ 5:47 pm

Does your current GP have the skills and knowledge to care for ME/CFS patients?

  • NO - sympathetic but needs more education (43%, 413 Votes)
  • NO - not interested in ME/CFS (21%, 204 Votes)
  • YES - to some extent (17%, 164 Votes)
  • NO - knows nothing about ME/CFS (11%, 108 Votes)
  • YES - very much so (8%, 69 Votes)
  • Total Voters: 958

Start Date: February 1, 2013 @ 12:38 am
End Date: March 28, 2013 @ 5:22 pm

Overall, what has happened to your health in relation to ME/CFS during the course of 2012?

  • Major improvement (4%, 39 Votes)
  • Minor improvement (14%, 140 Votes)
  • No change (19%, 194 Votes)
  • Minor deterioration (31%, 320 Votes)
  • Major deterioration (32%, 340 Votes)
  • Total Voters: 1,033

Start Date: January 1, 2013 @ 12:08 am
End Date: March 28, 2013 @ 5:22 pm

Who uses our website? Up to 2 votes per person are allowed

  • I have ME/CFS (UK) (65%, 689 Votes)
  • I have ME/CFS (Overseas) (4%, 39 Votes)
  • I may have ME/CFS (9%, 92 Votes)
  • Carer (3%, 32 Votes)
  • Partner (4%, 42 Votes)
  • Parent (6%, 69 Votes)
  • Health Professional (3%, 32 Votes)
  • Journalist/Broadcaster (0%, 4 Votes)
  • Other (6%, 65 Votes)
  • Total Voters: 970

Start Date: December 1, 2012 @ 1:10 am
End Date: March 28, 2013 @ 5:21 pm

Have you consulted your MP (whole of the UK) about an ME/CFS or benefit related issue? If so, what was the response?

  • Very helpful (10%, 45 Votes)
  • Fairly helpful (9%, 40 Votes)
  • Neutral (9%, 39 Votes)
  • Unhelpful (18%, 83 Votes)
  • Refused to help (6%, 27 Votes)
  • Awaiting a response (4%, 16 Votes)
  • No - never contacted my MP (44%, 205 Votes)
  • Total Voters: 457

Start Date: November 1, 2012 @ 12:00 am
End Date: December 31, 2012 @ 6:26 pm

If you have applied for ESA (Employment and Support Allowance), what was the outcome?

  • Awaiting a decision (10%, 59 Votes)
  • Placed in Support Group (14%, 78 Votes)
  • Placed in Work Related Activity Group (24%, 136 Votes)
  • Refused - successful on appeal (7%, 40 Votes)
  • Refused - unsuccessful on appeal (7%, 41 Votes)
  • Refused - appeal in progress (11%, 63 Votes)
  • Refused - did not appeal (7%, 39 Votes)
  • Have not applied for ESA (20%, 112 Votes)
  • Total Voters: 568

Start Date: October 2, 2012 @ 7:42 pm
End Date: November 1, 2012 @ 9:15 am

How many hours of solid uninterrupted sleep (regardless of medication) do you normally have each night?

  • Less than one (1%, 22 Votes)
  • 1-2 (8%, 159 Votes)
  • 2-3 (18%, 349 Votes)
  • 3-4 (22%, 420 Votes)
  • 4-5 (14%, 273 Votes)
  • 5-6 (10%, 188 Votes)
  • 6-7 (7%, 137 Votes)
  • 7-8 (6%, 119 Votes)
  • 8-10 (7%, 124 Votes)
  • More than 10 (7%, 98 Votes)
  • Total Voters: 1,890

Start Date: September 1, 2012 @ 6:02 am
End Date: November 1, 2012 @ 9:16 am

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