SURVEYS

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MAY SURVEY

The May website survey is asking about blood pressure measurement and ME/CFS.

Blood pressure is the pressure of blood in your arteries – the vessels that carry blood from your heart to your brain and the rest of your body. You need a certain amount of pressure to keep the blood moving round all parts of your body. Your blood pressure naturally goes up and down throughout the day and night, and it’s normal for it to go up while you’re moving about.

Is your blood pressure usually normal, low (hypotension) or high (hypertension)? Or do you not know what your blood pressure measurement is?
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Archive of Surveys

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What do you believe is primarily responsible for triggering your ME/CFS?
1881 votes · 3252 answers
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To what extent do you also have gastric and bowel symptoms since being diagnosed with ME/CFS?

  • Constant (25%)
  • Most of the time (47%)
  • Occasionally (19%)
  • Not at all (9%)

    • Total Voters: 525

Start Date: February 1, 2014 @ 12:04 am
End Date: June 1, 2014 @ 8:08 am

What is the most important issue for The MEA to campaign on in 2014? You can tick up to six answers.

  • Benefits (17%)
  • Medical Education (18%)
  • NHS Services (15%)
  • Nice Guideline Review (12%)
  • Research (21%)
  • Treatment Trials (16%)
  • None of the above (0%)

    • Total Voters: 372

Start Date: January 1, 2014 @ 12:03 am
End Date: June 1, 2014 @ 8:07 am

Overall, what has happened to your ME/CFS over the past year?

  • Major improvement (3%)
  • Minor improvement (17%)
  • No change (25%)
  • Minor deterioration (27%)
  • Major deterioration (28%)

    • Total Voters: 382

Start Date: December 1, 2013 @ 3:01 pm
End Date: June 1, 2014 @ 8:07 am

Have you written to or visited your MP, MSP, AM, or MLA in relation to ME/CFS? If so, how helpful was his/her intervention?

  • Very helpful (6%)
  • Partly helpful (13%)
  • Not helpful (33%)
  • Made things worse (2%)
  • Never contacted an MP (46%)

    • Total Voters: 192

Start Date: November 1, 2013 @ 8:39 am
End Date: December 1, 2013 @ 8:38 am

What is your MAIN reason for using the MEA website?

  • Diagnosis (26%)
  • Donating / Fundraising (0%)
  • Finding a Local Group (5%)
  • Finding an NHS Service (3%)
  • The news blog (22%)
  • Research (23%)
  • Treatment (14%)
  • Website poll (1%)
  • Other (6%)

    • Total Voters: 519

Start Date: October 1, 2013 @ 11:48 am
End Date: November 1, 2013 @ 8:01 am

How many of your blood relatives have (or did have) a diagnosis of ME/CFS? Overseas votes are welcome in this poll.

  • None (69%)
  • 1 (19%)
  • 2 (8%)
  • 3 (2%)
  • 4 (1%)
  • 5 (0%)
  • 6 or more (1%)

    • Total Voters: 1,051

Start Date: September 1, 2013 @ 1:02 am
End Date: October 1, 2013 @ 1:00 am

Should ME/CFS charities that support research be collaborating to help fund a Rituximab trial?

  • Yes (82%)
  • No (5%)
  • Not sure (10%)
  • Neutral (3%)

    • Total Voters: 516

Start Date: August 4, 2013 @ 8:51 am
End Date: September 1, 2013 @ 1:01 am

Are you going to apply for a Personal Independence Payment (PIP) from the DWP?

  • Yes- definitely (24%)
  • Yes - probably (7%)
  • Not sure (12%)
  • No (23%)
  • Not yet - I claim DLA (34%)

    • Total Voters: 425

Start Date: July 1, 2013 @ 4:33 pm
End Date: August 4, 2013 @ 8:31 am

How supportive is your GP in providing medical evidence for DWP benefit claims?

  • Very helpful (23%)
  • Fairly helpful (13%)
  • Variable (10%)
  • Never asked for help (17%)
  • Not helpful (15%)
  • Refuses to do so (5%)
  • Do not claim benefits (17%)

    • Total Voters: 420

Start Date: June 1, 2013 @ 12:14 am
End Date: July 1, 2013 @ 4:35 pm

Should ME/CFS charities that fund/support research be joining the UK Research Collaborative?

  • Yes – definitely (39%)
  • Yes – with caution (31%)
  • Not sure (9%)
  • No opinion (1%)
  • Probably not (5%)
  • Definitely not (15%)

    • Total Voters: 622

Start Date: May 1, 2013 @ 10:26 am
End Date: June 2, 2013 @ 5:46 pm

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