The following resources have been made freely available as direct downloads by the ME Association. It is a key aim of the charity that we provide timely and accurate information and we have the largest range of literature available anywhere on the internet about ME/CFS.
You can review the full range of ME/CFS literature in the website shop, or view and download the free resources we have made available below:
Blue Badge Parking Permits & Wheelchair Applications
The letter provides background information on the classification, severity and prognosis/permanency of M.E. and will be helpful when applying for Blue Badges from your local authority or for a wheelchair.
Case for Better NHS Service Provision
"The severely affected group require home-based management and designated in-patient beds for assessment and management..." The 2009 MEA submission to the APPG Inquiry, describes serious deficiencies and omissions in all of the above key aspects of assessment and care.
Claiming Benefits – Top Tips
If you’re faced with the daunting task of completing an application for Employment and Support Allowance, Personal Independence Payment or Universal Credit – pause a while and read these top tips from Ann Innes, Welfare Adviser to the ME Association.
DecodeME – The Largest Ever Genetics Study into ME/CFS
Anyone with ME/CFS can register their interest to take part in the study, which will collect clinical data via questionnaires and genetic samples through a 'spit and post' system. This means you don't need to leave your home to contribute. Download this leaflet and then visit the DecodeME website to learn more and to register your interest in taking part.
Diagnosis & Management in Young People – A Primer
ME/CFS affects children and adolescents as well as adults. This 61-page brochure was compiled to provide the information necessary to understand, diagnose and manage the symptoms of the illness in children and young people.
Diagnosis – Importance of Early & Accurate Diagnosis
Topics discussed in this leaflet, include: Why making an early and accurate diagnosis so important, Taking a good clinical history, Diagnostic criteria and characteristic core symptoms, Physical examination, Baseline investigations, Further assessment and investigation, Differential diagnosis, Timescale, Children and Adolescents, Specialist referral, Further information and research references
Disabled Facilities Grant
If you are disabled by ME/CFS and need to make structural changes to your home, you could be eligible for financial help from your local authority in the form of a Disabled Facilities Grant (DFG).
This free leaflet will explain how you can apply for the grant if you or someone living in your property has ME/CFS and the eligibility criteria that will apply.
Management – Ten Key Aspects
Topics discussed in this leaflet, include: Making sure the diagnosis is correct, the symptoms of ME/CFS, New or worsening symptoms, Routine blood tests, help from health professionals, Drugs that can help relieve symptoms, Striking the right balance between activity and rest, Dealing with emotional and mental health issues, Sorting out work, education, and family responsibilities, Obtaining state and private sector benefits How to obtain social care and practical support and help for carers, Vitamins, minerals, supplements, and nutrition, Alternative and complementary approaches.
ME Association – About Us – What we do and why we do it
This free leaflet has been written by Neil Riley, Chairman of the ME Association. It provides an overview of what we do as a national charity, who we are, and how we try to meet the needs of the ME/CFS community in the UK. It explains how we support, inform, campaign, and invest in biomedical research.
ME Association – Book List
We’ve made available a selection of self-help books, clinical guides, official reports, novels, and video documentaries that may interest people with M.E and those who care for them.
ME Association – Illness Management Report (2015)
This 2015 comprehensive report, 'No decision about me, without me' was based on a large patient survey. It examined patient reported outcomes for the controversial graded exercise and cognitive behavioural therapies and the preferred approach to illness management known simply as Pacing.
ME Association – Research Summary – The Pathology of ME/CFS
This Free factsheet provides a summary of what biomedical research is telling us about ME/CFS. It considers key symptoms, common triggers, and explains emerging evidence of disease pathology.
ME Association – The Ramsay Research Fund
The ME Association believes that investment in biomedical research is a key priority and we have invested more than £1million in recent years.
ME Association – The Telephone Helpline
We deal with each person individually, in a sensitive and professional manner. Every communication is kept completely confidential. ME Connect is staffed by a fully trained and supervised team of volunteers – most of whom have personal experience of ME/CFS. CALL ME CONNECT 0344 576 5326. Available 365 days a year, between: 10am-12noon, 2pm-4pm, 7pm-9pm
ME Association – What you need to know about ME/CFS
Myalgic encephalopathy/encephalomyelitis (also known as chronic fatigue syndrome) or ME/CFS is a complex multisystem disease with a wide range of disabling symptoms. This Free Factsheet provides information to help in the understanding of ME/CFS, its symptoms and management options.
ME/CFS/PVFS – Your Questions Answered
Topics discussed in this leaflet, include: Nomenclature – a disease of many names, Who gets ME/CFS/PVFS, How does ME/CFS start, What marks ME/CFS out from other causes of chronic fatigue and more
NICE Clinical Guideline on ME/CFS – A Summary of the 2020 Draft
This highlights the main points from the new draft guideline as they could prove helpful when in discussion with primary or secondary care providers ahead of the guidelines final publication.
Severe ME/CFS in Children – Dr Nigel Speight
Dr Nigel Speight, Hon. Paediatric Adviser to the ME Association, published a paper in July 2020 that discusses how severe M.E. can present in children and young people. He talks about the approach that should be adopted by doctors, and what can be done to help provide appropriate support and care.
Specialist Referrals - Hospitals & ME/CFS Specialist Services
Most people with M.E. are diagnosed and managed by their GP and members of the primary healthcare team. But there are times when you may need to be referred to a hospital specialist, or an ME/CFS Specialist Service, for advice on diagnosis, symptom and/or activity management.
Dr Charles Shepherd (Hon. Medical Adviser to the ME Association) provides several key points you might like to consider before you make travel plans. See also ‘Vaccinations and pre-travel health plans’ in the website shop.
Vaccinations – Flu & Pneumonia Vaccines (2020-21)
Flu Vaccination - provides information on all aspects of flu vaccination in relation to ME/CFS. You and your doctor can then decide if you ought to have this protection. Pneumococcal Vaccination - This vaccine is now being offered to people over the age of 65 and those with other health conditions (e.g., heart and lung disease) that place them at increased risk from this bacterial infection.