During the unprecedented Covid-19/Coronavirus pandemic, we have ensured that people with ME/CFS – and those who continue to experience symptoms following infection – are kept informed of the latest guidance and related information.
All the leaflets and template letters relating to the Covid vaccination are free to download. We periodically review and update them when new information emerges or the situation regarding the national restrictions are changed.
Please note these leaflets are downloads. You can read them on-screen and save to your computer, phone or other device and can attach them to any email you might need to send. But you will need access to a printer if you wish them printed.
Covid-19 & ME/CFS Guidance
Covid-19 & ME/CFS A Lockdown Summary – November 2020
Controlling the spread of the virus, Hand and Respiratory Hygiene, Vaccine Development, Testing for the virus, What to do if you have symptoms suggestive of coronavirus infection, Shopping – Food and Medicines, Employment. Government Guidance: The vulnerable and extremely vulnerable, ME/CFS Research, Progress on the new NICE clinical guideline on ME/CFS, Can pets transmit the infection?, Possible forms of treatment, What should people with ME/CFS do if they catch Covid-19?, the use of face masks.
Covid-19 & ME/CFS Employment Key Points – November 2020
Dr Charles Shepherd (Hon. Medical Adviser to the ME Association), discusses the measures in place to help people who are employed, who might still be furloughed, and those who are considering a return to work as the national lockdown restrictions are eased.
Covid-19 & ME/CFS Guidance
This covers: Covid-19 vaccination priority and ME/CFS, The safety of the Covid vaccines in general, The safety of the Covid vaccines for people with ME/CFS, Vaccine administration practicalities, Making a decision whether to have the vaccine.
Covid-19 & ME/CFS Long Covid & Post-Viral Syndromes – November 2020
The ME Association has longstanding experience in the management of post-viral debility, post-viral fatigue syndromes and post-infection ME/CFS. The information and guidance in this leaflet should therefore be of help to people in relation to the management of post-COVID fatigue and some aspects of post COVID syndromes where they overlap with ME/CFS symptomatology…
Covid-19 & ME/CFS Reducing the Risk of Infection – November 2020
Dr Charles Shepherd (Hon. Medical Adviser to the ME Association) highlights those in the at-risk group and provides a ten-point guide to preventative measures that everyone should employ during the national lockdown and in the months ahead.
Covid-19 & ME/CFS Welfare Benefit Changes – April 2020
Ann Innes (Welfare Adviser to the ME Association), reviews the changes made to the benefits process during the Covid-19 national lockdown. You might want to read this before making any applications or if you want to see what happens now when benefits are reviewed. Please also check the latest Government advice.
Letter Templates: Covid-19 & ME/CFS
Covid-19 & ME/CFS Clinical Vulnerability Adults
This letter can be used if you need to assert your right to be considered a clinically vulnerable person with ME/CFS during the Covid-19 restrictions. It has been updated with useful links to the latest information
Covid-19 & ME/CFS Clinical Vulnerability Students
This letter is for students and can be used if you need to assert your right to be considered a clinically vulnerable person with ME/CFS during the Covid-19 restrictions. It has been updated with useful links to the latest information
ME Association Covid Vaccine Eligibility Template Letter (V5) (19 March 2021)
We have produced these template letter to help you obtain (Group 6) access to the Covid vaccines. They contain all the relevant supporting information necessary to make your case for priority treatment. The CMO of Scotland has issued new guidance allowing for the possibility of those who were not recognised as Clinically Extremely Vulnerable (for inclusion in Group 2) to be included in Group 6and this new information for Scotland is included and a reminder about the CPD Module on ME/CFS
MEA Letter to CCGs (England) & Health Boards (Wales) – 19 March 2021
If you are unsuccessful after approaching your GP, you can use this letter to approach your local clinical commissioning group (England) or health board (Wales)