During the unprecedented Covid-19/Coronavirus pandemic, we have ensured that people with ME/CFS – and those who continue to experience symptoms following infection – are kept informed of the latest guidance and related information.
All the leaflets and template letters relating to the Covid vaccination are free to download. We periodically review and update them when new information emerges or the situation regarding the national restrictions are changed.
Please note these leaflets are downloads. You can read them on-screen and save to your computer, phone or other device and can attach them to any email you might need to send. But you will need access to a printer if you wish them printed.
Covid-19 & ME/CFS Guidance
Long Covid & ME/CFS: Information & Management May 2021
In April and November 2020, we provided information and guidance to the management of post-covid fatigue, post-Covid fatigue syndromes and the overlap between ME/CFS and Long Covid.
This was based on how our knowledge and expertise about post-viral fatigue, post-viral fatigue syndromes and ME/CFS could be transferable to people who were not recovering from COVID-19, and where the symptoms were the same or very similar to ME/CFS.
It has now been fully updated in this 40-page booklet to take account of developments in our understanding of the presentations and management of post-COVID-19 and how best to name the various clinical presentations.
Covid-19 & ME/CFS Vaccine Update May 2021
Monday 4th January marked the start of the UK mass vaccination programme against COVID-19. In this free leaflet we discuss: Covid-19 vaccination priority and ME/CFS, The safety of the Covid vaccines in general, The safety of the Covid vaccines for people with ME/CFS, Vaccine administration practicalities, Making a decision whether to have the vaccine.
Covid-19 & ME/CFS Reducing the Risk of Infection – November 2020
People with ME/CFS are already in a vulnerable/high risk group when it comes to catching COVID-19 – mainly because it is highly likely to cause an exacerbation of existing symptoms, or a more persisting relapse. It’s important for everyone with ME/CFS to do all they can to reduce the risk of catching this infection. This means adopting a way of living that is based on individual circumstances and individual risk factors.
Letter Templates: Covid-19 & ME/CFS
Covid-19 & ME/CFS Clinical Vulnerability Adults
This letter can be used if you need to assert your right to be considered a clinically vulnerable person with ME/CFS during the Covid-19 restrictions. It has been updated with useful links to the latest information
Covid-19 & ME/CFS Clinical Vulnerability Students
This letter is for students and can be used if you need to assert your right to be considered a clinically vulnerable person with ME/CFS during the Covid-19 restrictions. It has been updated with useful links to the latest information
ME Association Covid Vaccine Eligibility Template Letter (V5) (19 March 2021)
We have produced these template letter to help you obtain (Group 6) access to the Covid vaccines. They contain all the relevant supporting information necessary to make your case for priority treatment. The CMO of Scotland has issued new guidance allowing for the possibility of those who were not recognised as Clinically Extremely Vulnerable (for inclusion in Group 2) to be included in Group 6and this new information for Scotland is included and a reminder about the CPD Module on ME/CFS
MEA Letter to CCGs (England) & Health Boards (Wales) – 19 March 2021
If you are unsuccessful after approaching your GP, you can use this letter to approach your local clinical commissioning group (England) or health board (Wales)